- 60 years old
- Date of birth: Dec 12, 1949
- Place of birth:
Chelmsford, Essex County, United Kingdom
- Date of passing: Nov 2, 2010
- Place of passing:
Wichita, Kansas, United States
|"Because of Annie" You were my Bright and Shining Star. I will love and miss you until my memory fades. Thank you for sharing your life with me. "Rock On, My Angel" Love you sweetie, Bobby xo|
A TRUE "LOVE STORY"
Journey Through Multiple Myeloma
"There Is No Greater Love,
Then Sharing The Dying Process
With The Dying. Nothing Harder."
Henri Nouwen 1932-1996
This memorial website was created on on 4 September 2011, in the memory of our loved one, Annie (Barber) Harrison, 60, born on December 12, 1949 and passed away on November 2, 2010. We will remember her forever.
ADDED: 11 December 2015: I've now been a griever for 5 years. And as I'm learning, we never really get over grief, but we do get through it. Looking back to that dark night on Sept 4th, 2011, when I started my journey on Forevermissed, I was in so much pain. But now, in the present, I look at Annie's memorial and can clearly see what I have created. "Hope for a new day." A day that is not filled with pain and suffering around every corner, a day where tears are replaced by laughter, it's once again fun to watch the children play--listen to the birds singing, a day where everything is simply okay. No, it can never be the same, but one day it will be okay. Through this memorial I give you my love, and share a story of one of the most beautiful women I've every known, "My Annie."
If you need help with your Grief contact me: email@example.com
When Annie passed the world lost one of it's little known, great humanitarians. Not only to me, and my family, but to the unsuspecting stranger that needed some help, or just needed a compassionate ear, listening to and understanding their distress. She seemed to always have an answer, or knew where to find it. She especially loved the children of the world. If she could have, I am sure she would have bundled them up and brought them home with her, with a big smile on her face, all the love in her heart, and say to me, "look what we got." She would have rescued them all. Annie was a great loss to society, but where there is one there is more. I have to believe that!
Annie was a uniquely different person! She made it clear to me what her wishes were. She didn't want a funeral. She wanted to be cremated as quickly as possible, as she didn't want to be in the morgue too long. She wanted to be flown home to her motherland England and have her ashes sprinkled near her mother and two sisters. She was cremated 22 hours after she passed, and at the 36th hour, she was back in our home. A week later her ashes were flown to England and sprinkled in the beautiful "rose garden," at Chelmsford Crematorium where her mother and two sisters are resting, as she wished. Love her! xoxo
I've been on forever missed since Sept 4th, 2011! I found it by accident. This has been one of the greatest finds of my life. When she passed on Nov 2, 2010, I was hurt, lost and in desperate need of guidance. Then, one day I was searching the web for someplace I could write about Annie. I stumbled onto forevermissed.com which changed my life; as I set up her memorial that day, I knew I would have a safe place to go and visit her as often as I liked. Today is the 25th of May 2012. I still miss her terribly, but having access to her on a daily basis helps with the grief. I know that now, because when I look at her I don't get that overwhelming feeling of sadness and tears. I can now think of the happier times. We were married 39 1/2 years. Annie was special, as all loved ones are.
"Death Is So Final:" On a daily basis Annie's death is always flowing in and out of my consciousness and unconsciousness. It is like a grinding pain that becomes suffocating at times. My mind is often locked on the assumption that this is just a dream and I will wake up soon. When I lay my head on the pillow each evening, I close my eyes and pray that I won't have nightmares or even worse, night terrors. Still, they come and they go, and I awake to realize that this is my new reality and not a dream at all. "Death is so final." There's no escaping the pain or torment it visits on me everyday. Most, say I'm just grieving, but I know the truth~it is much more than that. It is a battle between life and death, the sane and the insane world I now find myself in. When I think of my sweet Annie, her journey through cancer was always about dying, she was not going to survive. Despite everything I feel, I have got to some how turn around all the negative emotions, and not let the cancer defeat me too. My journey can not be defined by hers. This is her story. "Death Is So Final." "Because of Annie"
ADDED: 5 Jan 2015: When I started writing on Forevermissed back on Sept 4th, 2011, I felt I was doing something very special for me and for Annie. I had no idea where this was all going to lead me. Just over four years later I am the Ambassador to Thecaregivertspace.org as well as a blogger, moderator for live chat and a first contact person. We are the caregivers for the caregivers. Based in New York, as is Forevermissed.com. You've already read what Annie's memorial and this site means to me, but you need to think outside the box and look at the big picture. There is an estimated sixty-five million caregivers in this country in one form or the other, and many of them are grieving and have no idea what to do or where to turn. I will help them find what they need. And of course, for those grieving, there is no better place to start than here on the Forevermissed site. My motivation is to reach out and touch others, one person at a time. It took me almost 4 years of navigating troubled waters before I was able to say, "I'm okay now." Annie is gone but not forgotten. "I will see her on the other side." If I had one piece of advice to hand out to you it would be. "write about your loved one, share your memories-your stories with the world as I did. Over time it becomes a real grief buster. I wish you all the best.
Annie has a website at www.becauseofannie.com . If you decide to check it out, there is a link on the site's home page that sends you right back to this page.
On May 15, 2012 I started building a facebook cancer page, dedicated to my wife Annie. If you would like to view it, just click on this link. www.facebook.com/BloodCancerAnnie it will take you to her page. Please click on the "Like" icon if you like the page.
Sept 4th, 2012: Today was ANNIE'S ONE YEAR ANNIVERSARY on forevermissed memorial web-site. What a wonderful place to store memories to last a lifetime, and into the future for generations to come. I want to express my sincere thanks to the staff at forevermissed memorials for providing such a wonderful site.
ADDED:10 February 2016: If you are reading this article, perhaps you are either anticipating a loss or have recently lost a loved one.
Time Stands Still
One of the most painful experiences a loving caregiver will ever witness, is the dreaded moment when time stands still, and a loved one slips away in front of your eyes. Sadly, there’s nothing you can do to comfort the burden of your pain. It’s there, it’s real, and the grieving process that’s already firmly entrenched in your mind, will begin in earnest. Grief’s arrow will pierce your heart.
This is not how it happened to me, but in a sense it is. And if I didn’t know the truth, I couldn’t speak it.
Internally or vocally you’re screaming out in pain, but no one knows the depth of your sorrow, but you. Everything around you becomes an illusion, where it becomes difficult to process the real from the unreal. You know you saw your loved one pass, but in your mind it’s a case of, “maybe it just a dream.” It didn’t really happen, did it?
You find yourself standing on the edge of a cliff, not sure which way you’re going to fall. You become frightened, you’re lost and don’t know what to do, and then it hits you, this is real, as you fall back into a chair mumbling the words, “I just want my loved one back.”
The pain is excruciating, the fog of death is thick, and you’re slowly coming to terms with the fact that “life as you knew it has, changed forever.” There’s no going back, the care giving for your loved one is now over, and I can honestly tell you from experience, you’ve just traded one nightmare for another.
In my case, being a caregiver for my dying wife Annie was a nightmare. My anticipatory grief was always present, and in the forefront of my thoughts. She so wanted to live, but was not afraid to die. I guess I just wanted her to live, and having to let her go at the end, was beyond my understanding of how life was supposed to be. The emotional drag put on my life by viewing her death has not been good, and doesn’t create a good last memory. The medical personnel telling me how peaceful her death was, by noting the lack of stress on her face, meant nothing. She was just gone!
Oh sure, all her pain and suffering from the cancer was gone, and her nightmare was over, but for me, my nightmare was just beginning. And that may sound a bit selfish, but grievers know, “it’s the truth.”
There’s no second chance to say I love you, fix her a nice meal, or to do the special things for her that sometimes made her day. This body that was continually in motion for thirty months, was now at a standstill. It was like being on a merry-go-round for thirty months, going round and round, never stopping. Then it happens! The merry-go-round stops, and you can no longer stand, so you fall to your knees, head still spinning from all that you went through. And when you finally raise your head and look up, what do you see. In my case it was darkness, laced with a lot of chaos from fear of the unknown. Which is the same fear I, and most likely you felt when care giving and battling for your loved ones life. You are now back on the merry-go-round, but this time it’s different, it’s the merry-go-round of grief!
This is my fifth year post grief and I’ve written thousands upon thousands of words on the subject, but this post was truly meant to be about that moment in time, “When time stands still.”
Still, I need to say this: If your new to the world of grief, or been a griever for awhile, the most important advice I can give you is to not hold back your emotions. You must let them flow. Your tears are your best friend, and if you’re like me, you may cry a thousand tears, think you’re getting better, and cry a thousand more. You’re a griever, where logic is simply a state of mind, which may or may not play a role in your healing process. If you’re feeling locked up, get the photo albums out and start browsing through your pictures. That will allow you to revisit old memories which may get your tears flowing again. I’ve said this before, you have to grieve to get through grief.
Journal your thoughts, or simply jot them down on a piece of scrap paper with a date. That’s how I tracked my grief. I could look back over a year or two and proclaim, “wow, you were really messed up dude!” Not realizing I was still messed up, just not as bad. I was healing. And I knew it based on old notes I’d written. And the photo albums, well, when you can look back on the old memories, and the emotional rush doesn’t hit you so hard, or the tears fall in more of a random pattern, you are healing.
I’d like to share something with you, that a stranger recently posted as a tribute on Annie's online memorial.
As you read the tribute, think how important “Your Story” would be to others. All grievers have their own unique story to tell, and think of the people you could touch, and perhaps help by sharing your journey through grief. And believe it or not, over time it becomes refreshingly healing.
“I can never thank you enough for sharing your journey with us. The help you have extended goes way beyond the readers and posters here. So much to say, but for now, adding what Henri Nouwen said in OUR GREATEST GIFT, our “fruitfulness” lives on way beyond our passing; it is then at its greatest.. There is no greater love than sharing the dying process with the dying. Nothing harder. Should Nouwen be alive today, you and Annie would be added to an updated version of Our Greatest Gift. What a gift that you have given to us, especially me.
God’s peace always..”
Henri Nouwen, was considered one of the great writers of our time. A Dutch Catholic priest, professor, writer and theologian. His interests were rooted primarily in psychology, pastoral ministry, spirituality, social justice and community. Henri passed away in 1996. Wikipedia
ADDED: 5 February 2016: This blog was my first viral blog, having over 75,000 views and 4,000 shares in the first eighteen hours.
Caregiver Grief & Loneliness
On 28 December 2015 I posted Grief: a silent killer. In the article I discussed caregiving, grief, stress and the role they play in our long term well being. After reading over one hundred-fifty comments to the blog on the Caregiver Space Facebook page, I saw an alarming issue that I failed to address, and it’s a key ingredient to the others when caregiving, grieving, or after the grief.
Caregiving can create a strong sense of loneliness, as folks, often friends and family just seem to disappear into thin air. That’s compounded by the fact that sometimes communication with our loved one can be very limited due to the nature of the disease or illness. In other words, there may be no communication for lengthy periods of time.
When I was caring for my wife Annie, due to her low immunity we could go several days without a visitor of any sort. And the fact that she was on high dose narcotics didn’t help matters any as, she slept much of the time.
What made matters even worse, was that Annie, although very ill was lonely too. It’s can be a real oxymoron. People can be a nuisance at times, when they come into your home and all they want to talk about is their problems, especially to a woman that is in her hospital bed dying of cancer. But being desperate, loneliness often wants them there anyway. Company becomes company, and the conversation, no matter what it is, becomes fresh and new, with a new voice. Sometimes the new voice takes the patient or loved ones mind off their own illness, and that’s a good thing.
It seems to me, what it boils down to is communication. I wasn’t very good at communicating to friends and family that we could sure use some company. Instead, I just wondered why not many people stopped by. It’s tough. There were times when people did stop by and Annie had very low immunity, the new rules, as laid down by her oncologist, had changed the rules on the playing field. I wasn’t allowed to let any person, especially children, near her over the fear of her catching a germ which could lead to a very serious, and in-fact fatal infection. So I had to turn them away. So as you can see, loneliness is a big part of caregiveing, and can happen through no fault of anyone, or the fault of everyone and everything. Sometimes, loneliness simply gets lost in translation.
Grief also creates a strong sense of loneliness, and can lead to a lot of solitude. On the other hand we may be surrounded by people, but we’re still lonely over our loss. In essence grief and loneliness go hand in hand. It’s the double edged sword effect.
When one grieves over a loss, there can be a strong sense of isolation, and in that instance the isolation creates the loneliness. And I might add, the loneliness felt from feeling isolated is a real problem and can cause mental health issues.
I saw Dr. Bryant, my psychologist, the evening of 30 December 2015. He said to me, “my biggest concern at the moment is dealing with your loneliness.” He said it can create instability in a person, depression, anxiety and escalate to a whole sundry of other problems, which perpetuates being lonely. Many of the illnesses I went through in 2015, probably used loneliness as a contributing factor.
From his words, loneliness is not to be trifled with, and can make you sick over time. Having said that, a full recovery is possible when and if the loneliness dissipates.
When I was 20 years old I joined the Air Force. After basic training and technical school I was sent to England for 3 years. The first six months in England, even though I worked most days and made many new friends, I felt like I was the loneliest guy on the planet. Over time, I think the cycle broke rather naturally as I accepted my fate. I was going to be there for 3 years whether I liked it or not, so I might as well spend my time having some fun. So I did! Eventually, I felt less lonely with my military buddies than, I had at any point in my life.
In the metaphor the loneliness was real, but there was always going to be a fix. After all, I had a maximum time limit of 3 years to the loneliness, then I’d be going home, and I could always see the light at the end of the tunnel.
Losing a loved one is the real deal. There is no time limit on anything to do with grief or the loneliness, and at the time not much hope either. And there is no magic wand to wave and make things better.
The dynamics of grief is such that we can literally bury ourselves in our own sorrow, cutting ourselves off from the outside world, and our family and friends. In doing so, we inadvertently create circumstances that will fester, and develop into full blown loneliness, during and after the grief.
Understanding that loneliness and stress are bits and pieces of grief, one needs to take grief very seriously. When mixing the three together, the grief can become very intense over a short period of time, and in the case of elderly couples it can lead to extreme grief which develops into the broken heart syndrome. In a research study over a 9 year period of over 373,189 elderly U.S. couples, by Nicholas A. Christakis of Harvard, and Felix Elwert of the University of Wisconsin, it was noted that in 18 percent of surviving male spouses and 13 percent of surviving female spouses died not long after their other half, from sudden death due to all causes. So if you lose and elderly parent, and the other parent is alive, pay attention to them. Help them through their loss if you can.
Personally, I despise being lonely. But it’s my burden to carry and I carry it every day, where ever I go. My life has turned into a 4 step program. First there was Caregiving, then the grief and stress, now loneliness. That’s a lot for me or anyone else to deal with. It’s like being caught in a shadow world where one minute you can see your shadow and the next minute you can’t. Meaning, we walk out of the house with good intentions thinking we have it all figured out, then soon realize, we don’t. It’s just another illusion of happiness. It’s really tough to have anything other than spurts of happiness when you're lonely.
Another point I should make is that loneliness is kind of like grief, in that it allows us to make poor decisions. Perhaps, we might do things we wouldn’t normally do for a fleeting moment of self gratification. For example, buying a new expensive feel good toy that elevates our spirits for the moment, but when we get home we think, how silly, I don’t want, or will never use that toy. And the beat goes on.
How do we get out of loneliness
I say we, because I’m stuck in the loneliest period of my life as I write this article. Yes, I could go out and meet someone, but I’m smarter than that. Loneliness is very deceptive. I could one day get over the loneliness, and wake up one morning with someone that I don’t want to be with, or perhaps, I don’t get over the loneliness quick enough, and she decides she’s made a bad decision and leaves me. Either way, someone often gets hurt.
What I think I’m going to do is, get more involved with volunteer work, which will get me out into the community and help me start meeting new people, and doing some things that I might not necessarily want to do, but in order to break the cycle of loneliness, I need to do. I really have no other answers, or options that I know of. I’ve been told, yoga and meditation are helpful, but I’m not that guy. I know this, being around family and grandkids provides some comfort from the storm, but are not the answer. The answer lies from deep within me, and I just have to dive in and pull it out.
This has to be my year, and I’m going to get better and break the cycle of loneliness, no matter what it takes. I know, I’ll stumble, maybe fall a few times, but each time I do I’ll get right back up, dust myself off and try again.
When I was in the 7th grade, and at a school dance, I was so afraid to ask a girl to dance with me, in case she said no. But I did it, and after I got turned down a couple times, I became more determined than ever to get a dance. Then fate intervened, and this cute little popular girl named Bonnie, walked up to me and asked me if I’d dance with her. I couldn’t believe my luck.
One thing I know for sure. Sitting around in this house day after day is not going to break the cycle of loneliness, or change my luck, but it could break me if I don’t get that dance.
And sometimes, despite all we do to break the cycle of loneliness, we still need a little help. So, as I sort of did at the dance, put yourself out there and just maybe fate will do the rest. It’s not going to be easy, but you can do it, and so can I.
My fear is, if we fail, the consequences could be dire.
I wish you the best!
ADDED: 5 January 2016: Over the past calandar year, 2015, I've written and published 50 blogs, many on grief. The following Is but a few of the blogs I'd like to share.
ADDED: 4 Jan 2016: I wrote this article/blog on the Caregiver Space, publishing on 28 December 2015. It's had over 3,000 shares world wide. Since it was so well received by grievers, I felt I needed to share it here on Annie's memoral knowing it would be helpful for others.
We must grieve to get through grief. However, we have to be mindful of the hidden dangers of grief's side effects. Lurking around every corner you may find yourself caught in deep loneliness, and maximum stress. It can make you sick.
Grief: A silent killer
You know, I could start this article out with a bunch of fancy words and statistics to perhaps prove a point, but I really don’t need to.
This is the 50th blog I’ve posted on The Caregiver Space this year, and all are in one way or the other, either related to my wife Annie, or she was the inspiration behind them. I lost her to a wretched cancer on November 2nd 2010.
Annie’s journey through cancer was very difficult, and the truth is, she was always dying a little more each day. From the moment of her diagnosis/prognosis, which was, “we can’t figure out why she is still alive,” but she may have “three to four weeks.” Imagine trying to wrap your head around that grim news.
And I get it, when someone says, “why would you post this blog during the holiday season when spirits are running so high.” My answer, “why wouldn’t I.” You see, I’m now thankful for what I have, which to me is the gift of having the ability and platform to share stories and events that are happening to caregivers every minute of every day, and don’t magically disappear during the holidays. I say things that many folks are thinking, but don’t want to talk about. I call it “The Truth.”
And the truth is, none of the serious illness we get are discriminatory. I don’t care if you’re a Republican or a Democrat, a lawyer or a doctor, rich or poor, black or white, it just doesn’t matter. Many of the serious diseases will level the playing field for all, and can bring you down no matter who you are. And you will most likely need a caregiver. Someone like me that truly does care for your well-being regardless of your status in life, and willing to share stories or articles with you anytime of the year. Some may just help you get through a rough patch.
Caregiving is like going on a journey where no person has gone before. Why, because if you haven’t been through the experience, you can’t possibly understand the concept of just how difficult being a caregiver can be. It will take you to places where you don’t want to go, and having you doing things that you don’t want to do. Your emotions will get very elevated at times, and your stress level can be at the top of the charts. In essence, stress from being a caregiver can, and if not controllable, create a very unstable and unhealthy lifestyle.
There are many books floating around out there on how to manage your stress. Well they may be fine when dealing with normal day to day lifetime stressful issues, and we all have them, some worse than others, but if you think a caregiver deals with typical stresses, think again.
Enter the caregiver for a terminally ill loved one, whatever the disease, throw in Alzheimer’s or Dementia, then you can honestly say, as did Tom Hanks from Apollo 13, “Houston, we have a problem.” And I don’t care how many books you read on stress, they are words and guidelines that can become meaningless to a caregiver under some very challenging, and tremendously unsettling circumstances. Imagine, under the dire circumstances of Apollo 13, someone handing Tom Hanks a book on how to deal with extreme stress. I wonder what his words would have been. Probably not, “oh, thank you.”
Yes, that was a simple metaphor, but in reality many caregivers face that scenario every day. And the truth is, there is no instruction manual or stress guide that can help you in the heat of the moment, which in truth is a moment that can be created many times a day, day after day. Tom Hanks was flying Apollo 13 by the seat of his pants, and so goes the caregiver. We have to adjust and improvise as events unfold. And of course, making the right decisions at the time will determine the outcome of the event. Good or bad. No pressure, huh.
If you don’t know by now, you should know, over and extended period of time, stress is a killer. It’s a fact that, many caregiver’s will get ill and die before the person their caring for dies. And it’s usually form some sort of live or dormant disorder that is triggered by excessive stress.
To prove my point I’m going to tell you what happened to me over the entire year of 2015, and why. It’s scary, and sneaks up on you without warning.
What is an extreme caregiver? Simply put, in my opinion, it’s a person that takes on the role of being a caregiver for a loved one that needs ongoing 24/7 care, which can lead to severe weight loss over a period of time, many sleepless nights, all while dealing with chaos and confusion from lack of instructions…And does it in a selfless manner, without complaint and with no regard for their own well-being.
That’s the way it was caring for Annie, as her hope for another day rested with me. There was no other choice. Annie had many broken bones from the cancer and was basically wheelchair bound, and in a hospital bed from the third week on. Just rolling her over in a manner that didn’t break another bone was a challenge. Her bones were very badly diseased from the cancer. She was on 200mg of Morphine a day, plus a Fentanyl patch, and Percocet when needed. Her pain medication, which she had to have, was my biggest nightmare.
I knew from day one Annie would not survive her cancer, but I guess I couldn’t accept the facts as they were presented to me. So, I spoke of my fears to her oncologist about all the pain medications she was on. He was brutally honest with me when he said that he was doing everything he could to keep her alive, and my job was to keep her out of pain. Then with strange facial expressions he explained to me the type of pain she was in, and walked away saying, “stay ahead of the pain Bob,” then turning back to say that if I get behind on pain control, playing catch up can be very dangerous as one extra pill can lead to the overdose that kills her. I guess I needed to hear that, and it seemed to make me more determined than ever to fight for her.
It was up to me to make sure that when she took her medications, I kept an eye on her for the first couple of hours watching for shallow breathing. If the breathing were to get too shallow, Annie could stop breathing altogether, and die. That was a huge responsibility for me, especially when trying to rest at night. I found myself continually waking up and looking at her chest to make sure she had positive air flow. Some nights her shallow breathing was so bad I stayed up all night, giving her a head massage and talking to her.
Bottom line is, I loved her and was willing to do whatever it took to keep her alive. Yes I was tired, but I knew I had the rest of my life to sleep and get rest, but in her case the days were numbered, it was not a matter of if, but when.
In a sense, my life was no longer mine. It belonged to everything I put into caring for Annie. And I would not change a thing. I loved her deeply, and whatever part of her that was not my world, became my world. My position in her life was way more than just being a loving husband. I was determined to make sure that when the sun set, even during the dark of night, she had the best possible chance of surviving for sun rise, and the dawning of a new day.
Thirty months after diagnosis, Annie passed. She died with the same grace she fought cancer with. She took me on an extraordinary 30 month journey, allowing me to see what a precious gift she was to me, while helping me understand love in a way that many people never will. I discovered, that for that moment in time, true love penetrated deep into my soul, there was no anger, no resentment, and I found it to be very spiritual. It seemed that my goal in life while caring for Annie was to share every minute I could with her in happiness. Despite everything cancer had in its arsenal to hurt Annie with, we fought back on a daily basis, and we had some fun.
Annie’s journey through cancer was never about living, it was always about dying, and a caregiver man and his beautiful wife that simply refused to throw in the towel. We literally fought until the end.
When you consider what I just said, when Annie died it was like I hit a brick wall doing one hundred miles an hour. I was totally lost, swallowed up by darkness and despair. I just wanted her back. Nothing else mattered. That went on for about three years, day and night. I didn’t know from one day to the next if I was coming or going and for that matter didn’t really care. Over a period of the 4th year the pain started easing considerably, and I was starting to feel alive again. So I thought.
Stress related illnesses
The year 2015 was the worst year of my life for healthcare issues. I was never a sickly person, and all through Annie’s illness I never even had a sniffle. My four years of grief were not quite uneventful. I was put on heart medication to control heart palpitations that started a few months after Annie died.
A few months after Annie passed I went to see my general practitioner for a physical. The only problem he found was low vitamin D. Still, his lingering words, “Bob, there will be consequences for your extreme caregiving, they just haven’t reared their ugly head yet,” still ring in my head. I think his thoughts at the time, followed by 3 years of intense grief, and the 4th year spend coming down from grief, created the perfect storm in 2015. My immune system broke down from all the stress.
In January of 2015 I had my annual physical. All my red blood cell counts were abnormally low. The low blood counts were later on diagnosed as being caused by moderate to severe Gastritis with anemia. Also, I had two separate lung infections with inflammation, requiring steroid treatment, followed by shingles. Then out of nowhere, came a high level of full body inflammation which triggered a search for tumors in my body. The inflammation in my body cause me to have what I called the perpetual flu, every day for 6 weeks. My general practitioner asked me if there was any place in or on my body where I didn’t hurt, I said, “my feet.” He kind of laughed as he left the room.
It’s been a long year for me. The low blood counts and inflammation triggered so many tests, I felt like a pin cushion. I’ve had a heart catheter, colonoscopy, gastroscopy, x-rays, and a sundry of other tests. Plenty of antibiotics, steroids, pain pills for shingles and so on. It was simply one thing after the other spread out over the year.
It seems like I’ve weathered the storm for now, but I have some more testing in January. The good news is, I don’t have auto immune disease, the bad news is, my full body inflammation can return at any time triggering another round of shingles and other illnesses.
I’ve climbed a mountain of health issues this year, but caring for Annie taught me how to fight through illnesses that to her would have been commonplace.
The answer, Caregiver=stress, Love=stress, Pain=stress
Under the circumstances as I presented them above, I don’t believe there is an answer to stress relief. Problem is, if you really love someone, when they hurt, physically you can’t feel their pain, but in your heart you certainly can and will feel their pain.
When my wife Annie was standing beside me and I heard her right femur snap and her hip break, and the audible sound of pain, all I could do was catch her as she was falling. Where do I put that! When she was put on the ventilator for 5 days fighting double pneumonia, sepsis (blood poisoning), and swine flu, I was told the odds of her surviving this event were incalculable. Where do I put that! The 4 or 5 times the doctors told me that Annie would probably not survive the night, where does that go. These types of events were a main stay of Annie’s illness. They happened often.
Looking back, it’s obvious I was living in anticipatory grief. Not knowing from one day to the next if she was going to survive or not. So in essence, the stress was not going anywhere. It was interlocked with the anticipatory grief and went with me where ever I went. You can’t make the feeling of doom and gloom go away and you can’t relax or read it out of your head. It’s there, and there it will stay. You’re gradually getting sick, and you don’t even know it. You think you are just sad.
Then, over time Annie passed. The anticipatory grief turned to full blown grief and from that point on, the stress was firmly entrenched in the grief cycle.
Three months after Annie passed I started seeing Dr. Bryant, Psychologist. The first six months I saw him twice a week, one hour a session. Five years later I still see him on a weekly basis for an hour each session.
I can look back on the many times, when I got back into my vehicle for the drive home after leaving his office, feeling okay, then I’d see something that reminded me of Annie and all the dark emotions came flooding back. Like I said, stress and grief are sort of intertwined, and stress seems to piggybacks off of grief.
When I first found out I was not well in 2015, the damage to my immune system had been occurring over a period of the previous six and one-half years. How was I to know that? And what could I have done to fix it, if I had of known? There is no magic potion or pill to take away ones pain. Yes, the pain can be masked through medication, but when the mask comes off, guess what, the grief that you haven’t dealt with is right there waiting for you with all its glory and stress.
Bottom line, if you love deeply, you will grieve deeply, the stress will be strong and right there with you too. Stress can be, and sometimes is, “the silent killer.”
by C Woolston – Related articles
Mar 11, 2015 – Still, there is one universal component of grief: Almost every loss, no matter how expected, will be accompanied by stress and disorientation.
Grief: Emotional Suicide--Published 23 June 2015. Blog #2:
After the death, we enter the very new and complex world of grief. We’re grievers! With the understanding that we all grieve differently, there is one thing for certain. Some, as was my case, will grieve much deeper than others. And therein lies a problem. Many of us will get caught in a little known, understood, or talked about grief trap. Emotional suicide! After Annie passed away, there wasn’t many days that went by for the first three years that I didn’t commit emotional suicide. I was guilty of getting caught in a trap that I had no concept of. It was all consuming–the five hundred year flood, so to speak.
What is emotional suicide?
This paragraph could easily be consistent with a person committing emotional suicide: quite frankly emotional suicide is living in misery–always, and I do mean always, thinking about and revisiting our loss, and not leaving any room for hope. One gets locked into the world of pitiful thoughts, and just stays there. Our focus is usually on the bad, and we’re unable to see or realize that we’re always stumbling deeper and deeper into a world of darkness, and therefore we have no way of escaping the pain and torment.
Most things we see represents the darkness in our life. And at that point we’re on the road to self destruction. Some people turn to alcohol or drugs to try to ease their pain, but the truth is, it will only make it worse in the long run. You can run from grief, but you can’t hide. After all, it’s pitched a tent inside of your head, and until you kick it out, it has no intention or reason to leave. Your sorrow becomes its comfort. Remember, in almost everything we do, and no matter where we are, happiness or wanting to be happy is being blocked at every turn by our grief. It’s a horrible place to be—if you loved deeply, it follows that you’re going to hurt deeply…And that’s just the way it is!
In my case, family and friends would come to my home, recognizing my unhealthy lifestyle and try to lift me up by inviting me out to family gathering or other events. To me, they thought they knew how I was feeling, when in reality they had no concept to the depths of my despair. Why would I want to go out with a bunch of happy people expecting me to be happy when all I can think about is my loss? And what’s happy about that! So instead of trying to pull myself out of the darkness, I alienated myself from my family and friends, shutting the door on almost everyone. They became nothing more than nuisances, a bunch of people that didn’t get it. Some would say to me, oh Bob, you’re just depressed over your loss, which in my mind was the understatement of the year.
My life was spiraling out of control and way beyond the world of depression, as when one loses all hope, one is approaching the point of no return. It is thought that depression is the leading cause of emotional suicide, but guess what, grief drives depression to a much higher level of despair, and over time can shorten one’s life span through some self-destructive behaviors…like, not taking care of yourself. There is little room for error, and a weak/unstable safety net for those of us that were, or are committing emotional suicide.
Escaping Emotional Suicide
We are kidnapped by our grief and taken to a place where we’d rather not be, and locked up in a world we don’t want to be in, and see very little opportunity for escape.
So here’s my question to you. Metaphor! What would you do if you were kidnapped by someone, taken out into the woods and locked up in a an old shed with no water? Would you try to escape, or just give into the fact that you were now a victim and just going to set there until you were released or died of thirst? Yes, you could argue that I’m mixing apples and oranges with this metaphor, but the concepts are the same. Personally, I would try to do everything I could to break out of that shed. So why didn’t I do that when I was grieving? Why did I turn everyone away? As I now know, my home was my shed, and all those people that tried to help me were the door I needed to walk through to escape, even if only for an hour or two.
We have to try to break the hold grief has on us, and by doing so we are lessening the chance of committing emotional suicide. Think of it this way. When I was on lock down in my home, everything I saw every day, was the same thing–it never changed from day to day. I was totally locked in a world of sorrow, sadness, and many unpleasant memories. Of course, my home represented many good memories Annie and I made together, but to a griever, those memories are hard to come by until we break the hold grief has over us.
I think I should have spent more time with the happy people, had what fun I could, and celebrated her life, rather than wallow in her death. Please don’t misunderstand what I’m saying…we have to grieve to get better and there will be plenty of grieving. But, it’s also imperative that we break the emotional suicidal hold grief has on us, and we do that by changing our routine. Perhaps, doing things differently once in awhile. If you go out for two hours, and part of that time you’re not thinking about your loss, you are breaking the cycle of grief. Any good that comes from your two hour break starts from your head and flows down through your body with a certain and much needed healing effect. A normal cycle of grief for many grievers is basically 24/7. They go to bed with it, and wake up to it. I certainly did.
Four months after Annie died, I flew out to Northern California to visit with my family, some friends, and do some fishing. My thoughts were that if I took a break for a couple of weeks, and got a much needed change of scenery things wouldn’t feel so bad. So I put on a mask and tried to run from my grief. To my surprise, for a few days me and my mask did okay. Then one day the mask fell off, and all I could think about was, “I want to go home.” Then on the plane ride home it hit me. When I get home Annie won’t be there and our normally warm and cozy home, is no longer going to feel that way either. And it didn’t–I walked straight into the arms of extreme loneliness once again.
Unknowingly at the time, the trip gave me some much needed hours of escaping the heavy grief, therefore, breaking the cycle of grief a bit. Although that didn’t change my overall battle with grief, it did give me a chance to build up my emotional reserves needed to fight the extended emotional battle I was in with grief.
Emotionally grief will drain you, or as some would say suck the life out of you, if you let it. When that happens to a normal griever, we have the ability to fall back on our emotional reserves to get us through the tough times. But at some point when committing emotional suicide through our continued visitation with our loss, our emotional reserves can be used up too, and when that happens, we hit the old proverbial rock bottom.
So as I see it now, it’s not only important, but imperative that we find ways to distract ourselves in an effort to break the cycle of grief, if only for a short while. During that small break from grief the body will start to heal. Yes it will be a vicious circle, and you will go round and round on the merry-go-round for quite possibly a long time, but after spending three long years in grief, and experiencing healing in the fourth, I know what needs to be done. I only wish I had of known back then. My grief would have been easier, not as complex, and I would have been able to kick that squatter out much sooner, that was camping out in my head.
I suffered terribly from grief because I didn’t have the tools and lacked the understanding to help myself heal. I was relentless in facing my worst fears and nightmares head on, on a daily basis in an effort to heal. My theory was, what hurts you the most, will in the end be what heals you. And as I’ve said before, it take’s grief to heal grief. And that’s all true, but I should have been taking a break from my grief through creative distractions, giving my body a chance to start healing. Instead, I chose hand to hand combat with grief on a daily basis, which is not a good idea, and in my case did more harm than good. I stayed the course, but now know I was committing emotional suicide.
When I talk about my grief, I have no regrets. I was doing everything I could to survive. However, now that you’ve read this article, I hope it helps you and you get the message loud and clear. Don’t stay in the trenches too long, you have to get out and take a break, do something for yourself. Take some “me time.” I know it won’t be easy, and then there is the guilt factor, grief in disguise, but as messed up as I was, if I had it all to do over again, I would have walked through that shed door into the arms of some happy people. People that loved and cared about me. It won’t change your grief, but over time it will help your body heal. That’s so important to your future well-being.
ADDED: 5 Aug 2015: Blog #3:
After The Death: Grief and Dreams. What happenes to the griever's after the death. This blog is how it was for me. It can be a real nightmare. This blog has been shared over 2,000 times nationally.
After being my wife Annie’s caregiver for thirty months through her battle with cancer, I lost her. I started out as a novice caregiver, but over time I got my Caregiving PhD through on-the-job training. It didn’t take me long to realize the pain and torment some caregivers go through is really bad. It was as if my body was always in motion, relentlessly moving to the beat of a hostile drum. Their wasn’t much time for me to sit and relax, sleep, or do many of the things that would have been good for me.
Within the first month I realized my body no longer belonged to me, I was a Caregiver. In my case there was no room for being selfish or of wanting anything that might be good for my well-being. But you know what, for thirty months my body never let me down and I gave everything I had in me to Annie. Never once did I get a cough, a cold, or a fever–I just willed my body onward. So, there I was always moving forward trying to stay one step ahead of the pain and fight off any infections. Annie’s bones were very badly diseased, she had virtually no immunity on a daily basis, and needed to live in a sterilized room as much as possible. A very difficult task!
Technically from the day I heard Annie’s prognosis I started grieving. After all, a three week prognosis is not very long. As you already know, Annie survived 30 months fighting a nasty cancer. I was told that I was fortunate, in that when I lost her my grief would not be as bad–I had been grieving for quite some time. Don’t ever buy into that theory, it’s not right.
When Annie died, this body that was always in motion lost it’s purpose. I felt like I hit a brick wall doing one-hundred miles an hour. She was just gone–no more giving her medications to her, tucking her in at night, washing her body and beautiful hair, cutting her finger and toe nails, messaging her legs when they hurt, sitting beside and sleeping in a recliner in the hospital for over one-hundred days, telling her and reassuring her “that this is not it Annie,” you’re gonna get through this event, and simply loving her with all my heart and soul–She was just gone! After the initial shock and knee buckling pain my mind started asking questions. Is she okay? How is she doing? Where is she? My faith told me she was in Heaven and doing just fine–but to me in the initial stages of grief, heaven didn’t have a role to play. I just wanted her back!!
An accidental solution: dreams
Having so many questions without answers was eating away at me from the inside out. I was searching for answers. Then one night I laid my head down on my pillow and looked across the five feet to her empty hospital bed. I noticed the sports bandage on her night stand that she wore after braking her pinkie finger. Eureka! A light bulb went on. Annie would sprinkle “Sweet Pea Jasmine” oil on her sports bandage, get in her wheelchair and move around the room wiping it on our fabric furniture and curtains. It made our house smell lovely. My thoughts were, that if I go get the oil and sprinkle it on my pillow I might have a sweet dream of her. I quickly checked the internet to see what it had to say. It said, by laying in a bed of rose petals it is sometimes possible to invoke a sweet dream, however, it can’t be targeted. I was very disappointed but at that point I was not going to give up. When I went to the wicker basket where she kept the oil, I noticed her perfume. I got really excited, and felt like great things were going to happen this night.
And they did! When I laid my head back down I said a prayer to my creator asking him to let me see Annie one more time, then sprayed her perfume on the pillow and the blanket up near where my face was. After I fell asleep I had the most beautiful dream of Annie. She was standing beside her hospital bed, dancing around in a pair of pajamas I bought her, letting me see she was okay. She was turning from side to side, letting me see that her spine was no longer bowed out, and her legs were healed. She was finally free of all the torment and pain she had been suffering. She seemed happy! I couldn’t see her face, but I knew it was Annie.
Isn’t it ironic? Her special perfume was “Angel.” The first four out of five nights I used the perfume I had a pleasant dream of Annie. The stronger the scent the more vivid the dream. And after the first couple of days, I always saw her face. Knowing that greed is a bad thing I didn’t ask to see her or spray the perfume every night, but when I did, the combination worked.
Several months later I was having problems with a question that kept going around in my head. “I can’t let go of her, until she lets go of me.” I went to see my psychologist, Dr. Bryant, and posed the question to him. He looked at me very seriously and said in a soft voice, “Bob, she is not holding on to you!” I said in a soft voice, “I believe she is.” That night I sprayed the perfume and asked for clarification of my question. What I’m going to tell you was simply amazing. When the dream came, Annie and I were up on a g
"Hi Sweetie, time is starting to slip away now. You've been gone 6 years, 4 months now, and although things can never be the same as they were, I still miss you, and think of you every day. There's still a shop in the area, where you bought many nice things for our home, and some lovely clothing for yourself, that I still won't go into. Way to many memories. When you went shopping, I was almost always with you. You'd pick something off a rack, hold it to your body asking, how would this look on me. It looks beautiful, Annie. You simply had a beautifully unique way of dressing, which matched your unique personality. I loved you so much, RIP Annie. Bobby xoxo"
"Hi Sweetie. I have loved you for a thousand years and I will love you for a thousand more. That's what it feels like since you went away. I can sit and listen to your memorial music, and fall into love with you more. Those memories we made during your illness ware so special, albeit a bit sad at times. When I was with you it was always alright. even during our darkest hours. We created something very special and hard to find on this earth. The "Perfect Love." I love you Annie, big hugs, Bobby xoxo"
"Hi Sweetie, Christmas and New Years has come and gone, and not much has changed. I was, in a more celebratory mood this time around. But, still didn't do anything special. It's like I've been saying on here all along, time goes on, but I stand still. I mean, it's certainly better than when you left me. I look back over those 4 years, and I was so sick. Grief really did beat me down. But, I survived, and kept on loving you all the while. And so it was, and so it is. I'm gonna be okay, I just wist I was with you, somewhere. It's strange Annie. I can set here at this computer, your memorial music playing, and hear your voice, see your face, revisit old memories, but, I can't touch you. I know, we must not handle the Angels. I know you're here, always here. For that, I am thankful. I love you Annie, rest in peace sweetie. Bobby xoxo"
"Hi Sweetie, today, 12 December 2016 is your birthday. It's been 6 long years and 1 long month since you had to leave. I so much hate Cancer. And I wish you were still here. Life is not and never will be the same, without you. I miss your smile, laughter and love, every single day. I hope there is something special going on in Heaven. I know you rock the place with your trademark smile and laughter. I want you back Annie. Love you always, Bobby XOXO I'm flying back home tomorrow from Northern California to Wichita. I will be soaring with the Angels. I'll keep a look out for you somewhere up in the sky. I have window seats. :)"
"Hi Sweetie, Been in California for 28 days now. I've only gone fishing a few times, it's been raining too much. The river usually has too much water to fish from the bank. I did catch a 40+ pound salmon at my favorite spot, when the river dropped, but the next day it was going up again. I miss bringing home cans of smoked salmon, setting around the dining room table and having a delicious snack with you. Wow, it's really hard living without you. So many things, I miss. My grief isn't so bad now, but the loneliness is hell. And I can't change a damn thing. I'm no longer sure what life is all about. We're here one day, then we're gone. You took a big chunk of my heart when you left, but thankfully you left me with a chunk of yours. So sad. I love you and always will. Bobby xoxo"
"Dear Sis, Remembering you with love today and always. Rest in peace angel. Miss you......love Doreen xxx"
"Hi Sweetie, I arrived in California on Sunday, 23rd Oct, only to be met with a very wet forecast. The two days I've been here it has rained and rained. The next ten days are calling for rain too. Gotta give those big Redwoods a drink. But, as you know, I can't catch the salmon when the river is running high, so I wait. Bummer! Remember all the times I brought home fresh wild smoked salmon. We really did feast, and fed some of our family and friends too. Wonderful times and memories. Now when I take some home, it's in the form of smoked salmon jerky. Delightful stuff. I love and miss you Annie. RIP Sweetie. xoxo"
"Hi Sweetie, finally some good news. Got my Decipher Genetic Biopsy testing back 4 days ago. I still have a significant prostate cancer, but as it turns out the results of the testing were excellent. Chance of cancer Metastasis over the next 5 years is .08%. 10 year prostate cancer specific mortality is 1.5%. So I'll stay on active surveillance as long as I can. The report also stated that with my low Decipher score in most cases the prognosis is favorable. I so wish all newly diagnosed prostate cancer patients would get this test. It's allowed me not to have treatment that has so many bad side effects. I'm very thankful, you truly are my guardian angel. Love and Miss you Annie, Bobby."
"Hi Sweetie, I'm still trucking on. My prostate cancer still has more questions than answers. I've been fighting off treatment (radical surgery or radiation) for six months now. I'm supposed to be getting the results of some genetic testing on Friday. And I'm told it will determine whether I need to go into treatment immediately or have some time, and stay on active surveillance. I'm sort of stuck between two worlds at the moment. With my cancer being intermediate grade, if I have treatment there is no guarantee the cancer will be gone. Thirty-three percent of patients see the cancer back within 3 to 5 years. Then it's considered metastatic. I love and miss you very much Annie and will keep you posted. RIP Sweetie. xoxo"
"Hi Sweetie, Congratulations. Your memorial has now had over 80,000 views. Who would have thought that, in the beginning this would have been possible. I remember the night I created the memorial, and my first tribute to you on here. Sept 4th, 2011. In that first tribute I said that I wanted the whole world to meet you, and hear your story. I know, no pressure, Huh! Well, I haven't accomplished that great expectation but what I have accomplished has truly been remarkable. There's no doubt that I've introduced you and your story to well over two million people. I've been writing since the second month after you passed. Almost everyday, and it's now just 2 months shy of 6 years. I've got letters and cards people have sent me, notes, emails, and the list goes on. You've touched a lot of lives Annie, and I'm really proud of you. I still love you very much, God bless you and RIP, Bobby xoxo"
"Hi Sweetie, we'll, I had my MRI on 15 August, not good. The urologist handed me a 4 page report, but it only took one line to sum up my condition. "High (clinically significant cancer likely to be present.) The MRI confirmed the biopsy results from 6 months ago. The urologist doesn't think it has changed much in the last six months. So, I'm gonna stay on active surveillance for another four months, then go have another blood test and see where we stand. I guess, I'm just kicking the can down the road, but once I have surgery and if I'm unfortunate enough to have the dreaded side effects, going to be hard years ahead. Roughly 70% of men have side effects. Same problems exist for those that have radiation. As those are the only two treatments for the disease, not a lot of choices. No medicine, chemo, available to get rid of the cancer. Just surgery or radiation. It's a very overlooked disease, considering it's the #1 killer of men throughout the world and #2 in this country. Got my plate full at the moment. I miss you Annie, as always, wish you were here, I could use one of your special hugs. They were always so good. Sweet dreams, and God bless, Bobby xoxo"
"Hi Sweetie, the count down to my MRI has begun. In six days all shall be revealed. However, I won't get the results until 15 Aug. I'm hoping and praying for some sort of regression, but without any medicine for prostate cancer, I've been on active surveillance the past six months and praying for a miracle. The doctor has asked and advised me to get surgery or radiation 2 times now, but I wanted the MRI first to see the extent of the cancer. I did have the biopsy and 6 of 12 core samples were positive for cancer but that does not tell the whole story. I suppose I'm being a little foolish waiting like this but, sometimes I'm not sure I even want to try to fix it. It's not easy living without you, and in fact is very difficult. I don't even know what I want anymore, here on earth. I know, stop being negative and be thankful for what I have. I think, once this MRI is over and I get the results and have the clearest possible picture of my cancer, I'll be able to make an informed decision. Hope so. Surgery or radiation are the only options at the moment, and neither are good choices. I love you sweetie, and miss you always. Bobby xoxo"
"Hi sweetie, I miss you. The days come and they go, and not much changes. You were my love, you were my life, and now you're just gone. I wish I could say things were much better, but although things are not as bad as they were, they're not much better. The days and nights are long, and you're never far from my thoughts. I will always love you Annie, goodnight and may God bless you. xoxoxox"
"Hi Sweetie, It's Fathers Day and I'm missing you. And usually when that happens I get on your memorial and listen to your music. Regardless of the reason, I still visit you every day. You played such an important role in my life for over half my life, and I thank you for that. You are irreplaceable and five years post death that has turned out to be true. I loved you Annie in a way that, well, some people just don't understand. I guess you had to be there to feel the love. If you see God, be sure and put in a good word for me. Need help with my prostate cancer. Love you, Bobby xoxo"
"Hi Sweetie, Just sitting here listening to your memorial music. All these songs will be forever etched in my memory as your songs, as they will always and forever remind me of you. You were a precious soul, so full of love. It's sad that the world lost such a loving, good person. Your smile, so radiant, is so dearly missed. As I sit here thinking of you, it breaks my heart knowing you fought such a tough battle, you were so innocent, full of hope, hope for a cure and a brighter day. I'm so sorry Annie, that you had to cross over. I miss you so much. Thinking of you sucks the air out of me, but I will battle on until we meet again. I love and I miss you every day. RIP Sweetie. xoxo"
"Hi sweetie, just stopping by to check on you. Annie, I really miss you. I so wish life had not happened as it did. If we'd only known, maybe there would have been something we could have done to change fate. Probably not, but I still wish you were here with me. It's is so lonely, and I'm dealing with prostate cancer as well. Who knows, maybe your fate is going to be mine too. I'm not afraid of death or dying, I feel like I've died a little more each day, sense you went away. I love you Annie, God Bless you. Bobby xoxo"
"Hi Sweetie, I wrote a blog a couple weeks ago, sharing with others, some of the old memories we made together in life. We made so many. I guess that's what life is about. Making memories to sustain us when times get bad. And over the past several years it's been about as bad as it can get. I see Dr. Byrd on 13 May to see if I'm going to get on the schedule for surgery on my prostate cancer. I'm relatively sure my prostate surgery will be in June. What happened to us Annie. We had a plan, and now look. You're gone, and 5 1/2 years later I have cancer. What a nightmare. I love you sweetie. Bobby xoxo"
"Hi Sweetie, I love you, and knowing in my heart that you are resting well gives me some sense of peace. It seems such a long time ago that you went away, and, just making that statement sucks the air out of me. I'm getting tired Annie. When you were alive I always felt like as a team we could do anything we set our minds too. We had so much energy, so much drive. But losing you seems to have dampened my drive and is slowly killing my purpose. I simply don't know what to do or have the focus to figure it all out. What a devastating loss you were. This newly diagnosed prostate cancer I have, is starting to make sense now. I know that people can die of broken hearts, caused by loss, due to all the grief related stress and loneliness. And I also know that heavy stress causes so many other problems, like cancer. I've been to hell and back the past five years, so I guess it just makes sense that I would get Ill. Just know this, one day, we'll meet again, in the place called Heaven, free of all the pain and suffering we mortals feel. To be honest, I can't wait. Jesus died on the cross and absorbed all mortals of their sins, if they believe in him as their savior. And I do. I love you sweetie, Bobby xoxo"
"Hi Annie, yesterday which was mothering sunday, I shared some moments with You, Mum, Wendy and Tracey at your resting places. The sun was shining over you all...Miss you all so much and love you all forever xxx xxx xxx"
"Hi sweetie, not having a good night tonight. Feeling very lonely. I really miss you. I know I mentioned I had prostate cancer, but that has not really influenced how I feel. Not really worried about it. It's simply a part of my life now. Nothing can ever shock me the way losing you did. I get through each day, still taking one step at a time. I'm so tired of wandering in the dark. Sure, I have some good days, when I'm not so lonely, but I'm still alone. My grief is not as it was, but overcoming my deep sense of loneliness, seems impossible. Then there is tomorrow, just another day in my life. I long for the peace, the old days with you. I love you, and please understand, I'm not trying to be a martyr, my love for you was simply that deep. And as I know now, losing a deep love is very painful. You know the saying, God will never give us more than we can bear, that may be true, but, He certainly filled my plate. God bless, RIP Annie. Bobby XOXO"
"Hi Sweetie, still no word on a treatment strategy. I guess I created a bit of a dilemma when I told the urologist I was interested in taking the wait and see approach. He said he didn't advise it, but if I wanted to have the Prolaris genetic assessment, it would give me a yes or no on my wanting what the assessment calls, active surveillance. It will look at the cancer cells and see how rapidly they're dividing and how aggressively they are. The test will also give me a life expectancy based on the findings. It actually says on the Polaris sheet that 40 to 50 percent of all low grade prostate cancers don't require any sort of intervention, but rather active surveillance. Blood is drawn every 3 months at urology, and if it stays under control he does a biopsy in 12 to 15 months, checking the status of the cancer. Watching you battle cancer with so much grace, taught me how to move forward with my cancer. I love you sweetie, Bobby xoxo"
"Hi Sweetie, I got my prostate biopsy back on 17 Feb, out of 12 core samples 6 core samples came back malignant. Not good. I'm gonna have to undergo target radiation or have my prostate removed. I'm still waiting to be assigned an oncologist. Dr. Rine is gonna be my radiologist/oncologist. You remember Grant, he did your radiology. He's one of the best in the business. I should be okay. Apparently they caught it early according to the urologist. But I wont know for sure until I see the oncologist. Wasn't the news I wanted, but it's what it is. What bothers me more than the cancer is I'll have to spend time in some of the exact same rooms as you did in your treatment, and that's going to bring back some traumatic memories. I'm really dreading it. I love you and will keep you posted as I go through the treatment. LOVE YOU MORE. BOBBY XOXO"
"Hi Sweetie. I had a biopsy last Wednesday of my prostrate gland. The Urologist took sixteen samples of tissue all around and internally too. My odds of having cancer based on my blood test came out at 17 percent. So now I wait until the 17th February to find out if I'm okay, or entering a nightmare. Prostate cancer caught early is treatable and survivable unless aggressive, then it is way more difficult. Regardless, treatment for prostate cancer really messes men up. No good options. Terrible subject. Things are going okay on the home front. Nothing going on out of the ordinary, we all still miss you terribly. I was a guest on a radio show the other day that is called Advocacy Heals U. It went really well. And guess what? I got to talk a lot about you. My favorite and most loved subject. It will always be that way. It's been five years, and nothing has changes in that regard. I love you sweetie. Bobby xoxo"
"Hi Sweetie, It's been over five years two months since I lost you. And anyone that says it gets easier with time, well, their right. But it doesn't change a thing' The loneliness still grips me, it's like I'm in a vice of sorts, and it's hard to move without seeing or thinking of you. I was talking to Andrew tonight, and telling him I'm so glad I didn't sell our home. Your presence is still everywhere. It may be an illusion, but I can see your presence moving in the hallway with your walker or pushing your wheelchair trying to get some exercise hoping that would help your body heal. You fought so hard, but in the end, we had to say good-bye. I love you my sweetheart, God I miss you. I'll always love you, Bobby xoxo"
"Merry Christmas Annie! I love you. This Christmas will be a carbon copy of the other 4 since you passed. Not going to do much. Plan on staying at home, and simply getting through my loneliness. It's not so bad on a day to day basis, but the holidays are hard to deal with. So many memories are made during holiday seasons, especially Christmas. Makes it difficult for those who have suffered a loss. But, tomorrow will come and it will go. And if I'm still here, we'll just have to wait and what God's plan is for next year. It's a mystery at the moment. Rest in piece sweetie, and yes I do have a lot to be thankful for, like--I was once kissed by an Angel. xoxo"
"Annie, This is a special day to remember fond memories of you, sending you birthday wishes to heaven. Love and miss you sis. Love your sister Doreen xxx"
"Annie, it's your birthday today. This is the fifth year it's come and gone, and I simply live the day in memory of you. What else can I do? It's not fun, there is no party favors or gifts. Just an empty feeling, and the memory of the love we shared. One day maybe I'll feel differently, but apparently it won't be this year. I love you kiddo. Rest in Peace Annie. xoxo"
"Annie, Another year has passed and you are forever in my thoughts and heart. Always love and miss you. love your sister Doreen xxx"
"Annie The English rose,Five years how fast time goes,I know your hubby miss you so much,Always telling storys all the time,How he met you !!! Plus He met a English lass I bet you put him in his place,He called me crazy I don"t know why lol,You used to wear Angel perfume just like me its gorgeous last for days,So when i have spray i think of you Now you are a Angel in Heaven,Say Hi to my David And my paps!!!Be lucky Annie free has a Bird XxxX"
"My Sweet Annie, this virtual flower is for you--you were my one and only. Five years ago today you left for a better place. It's still all so sad. Five years--sometimes it seems like it was just yesterday, and other times it seems like it was an eternity ago. But, as I am learning, death brings complexities to ones life that are often difficult to understand at times. I know this, 5 years later I've written a couple million words, at least, about you and your iconic journey through cancer in an effort to help others. Later today our anniversary blog I wrote will post on the Caregiver Space. It's a short note from me to you. Full of questions, which are lacking in answers, and perhaps will never be answered. It's full of love to. I love you sweetie, Rest In Peace MY Darling. xoxo"
"Hi Sweetie, Losing you has left my life in a real turmoil. I knew it was not going to be easy, but I was not prepared for the sadness and difficulty of readjusting to life after a death. It will be 5 years Nov 2nd, and I simply don't like being without you. Some say I need a companion, and maybe I do, but, I don't want one. Yet life is so lonely. Problem is, no one can fill your shoes, and I know I would be judgmental, not in a mean way, simply comparing someone to you. Which, I believe, if I'm reading what I just wrote correctly, I'm simply not ready to share my life with another. I still love you Annie. Bobby xoxo"
"I can never thank you enough for sharing your journey with us. The help you have extended goes way beyond the readers and posters here. So much to say but for now adding what Henri Nouwen said in OUR GREATEST GIFT, our "fruitfulness" lives on way beyond our passing; it is then at its greatest( In my own words of course). There is no greaater love than sharing the dying process with the dying. Nothing harder. Should Nouwen be alive today, you and Annie would be added to an updated version of OGG. What a gift that you have given to us, especially me.
God's peace always.."
"Hi sweetie, the day after dad died I broke out with the shingles. Took me back to when you were fighting cancer and got the shingles, which for you became a life threatening event. But together, we beat it back. The shingles for me were just a sideshow, as when I'm not well I think of you and your tenacious will to live and ability to fight off infections. I sure wish you were here. I miss you so much. It's just so painful knowing I can't hold you in my arms again. I can't believe it, you didn't do anything wrong, and yet here we are. You're gone, and I'm suffering a loss that I was not prepared for. I love you Annie. xoxo"
"My Sweet Annie, the day is rapidly approaching--it will be the 5th Anniversary of your death on Nov 2, 2015. And things aren't all that good on the home front. The 14th, 15th, 16th, I woke calling out your name. Annie is that you, Annie where are you, Annie are you there, no those are not quotes but I was waking and heard what I said. It's so sad. I was in Kohl's tonight, and the smell of your sweet scent, excitedly moving from one clothes rack to the other was everywhere. When I walk in there, it's always immediately about you. I guess some things never change, nor do I want them too. I need to feel your presence once in awhile, "Lest we forget." I love you sweetie, I will be writing you more as the big day approaches. It really is driving my emotions. Oh, this Saturday night, 19th, is the Leukemia and Lymphoma Society's big night. Light The Night Walk. And as always we will be there as a family in force, and walk the 2 1/2 miles in your honor. I love you. xoxoxox"
"Hi Sweetie, On Aug 27th, 2015, at 10:28 P.M, central time, Dad died. It was unexpected, but then again it wasn't. He had been in and out of the hospital three times over a two months period with pneumonia. I wasn't there, but stayed in close touch with my sister Teri who had been his caregiver for the last 8 years. It was a sad evening, as after losing both mom and dad I felt like a fish out of water. Not so much grief, as I'm still grieving my loss of you almost five years on, and it doesn't leave much room for other grief. But still, I shall miss him. He was my Dad, and as you know, an exceptionally kind man. I love you sweetie, xoxo Bobby"
"Hi Sweetie, I'm just a little over half way getting our home repainted. It's taking awhile, but I'm taking my time and doing it right. Janet from next door has been helping me. She comes over for about 3 hours in the morning, when she leaves I take an hour break then get back to it. It called Bayside blue, but it does not look like a typical blue. It's more like a deep ocean looking green in the shade, and takes on more of a greenish blue color in the sunlight. It's really cool. I wish you were here. I'd love to see your expression if you were to walk up to the house. I'm not quite sure what you might think, but most likely you would be pleased. When I get through painting the outside, I'll take a break, then start on the inside during the winter months. I call it the family safe house. I love and miss you everyday, and of course wish you were here. I'm gonna win five bucks from my brother Tim. He said after you died I would be married within five years. Nov 2nd, 2015 will be the fifth anniversary of your death and I haven't even dated. That's how much I loved you. Rest in Peace--Hugs and Kisses, Bobby. xoxo"
"Hi Sweetie, Hope you're doing alright. Sometimes I get on here just to listen to your music. It reminds me of the days after you went away, and never came back. I wish you were hear, life would be so much more beautiful, and not surrounded by uncertainty. We were a team for 39 years, and some times when a member of a two person teams goes missing it's hard to function, or recover from the tragedy. I do try, but I miss your touch, your love, which can never be replicated. There was and always be only one you. You gave the best love, the best hugs, I guess I just miss you. And I gonna love and miss you for a long, long time. RIP darling, see you in my dreams, I believe. I love you, Bobby xoxo"
"Hi Sweetie, Spent the 4th of July with Malissa and her family, well, I didn't get down there until 5 PM., their neighborhood was having a block party. Melissa's husband Van spent the day at the grill as did some of the other neighbors, there was a lot of good food. I didn't eat that much as my stomach lining is losing blood. I've been very tired over the past 1 1/2 years, and despite all my complaining to the doctor I guess he never took me seriously. In fact seven months ago I had my physical exam, and on the lab reports all my red blood cell groups had markers on them as being abnormal low. Apparently the doctor didn't see them, and his nurse told me I had a good physical with no problems noted. Here I am 7 months later, after just having a colonoscopy and my stomach scoped, finding out that the lining of my stomach is bleeding and of course that's why my blood counts are low. I'm very anemic, with excessive fatigue. The doctor took some biopsies, but I wont get the results for 2 more days. He thinks it's moderate to sever gastritis with anemia (bleeding). When I see the doctor on Wednesday, if I don't get a satisfactory answer as to where the blood is coming from, I'm gonna request an appointment with the cancer center. This is exactly how it happened to you. I've been losing blood, or have had low blood counts for over a year and a half now, as they were low during my physical in Jan 2014 too. And the doctor hasn't noticed. Hard to believe. Oh well, we'll just wait and see how it goes on Wednesday. Sweetie I'm not worried, and after watching you fight so hard for 30 months, I have a role model to help me stay strong. I Love you tons Annie, I miss you. Bobby xoxo"
"Hi Sweetie, how you doing darling. I decided to paint our home, got
rather creative on the color. It's called Bayside Blue. It's so cool. It looks like the deep green and blue color of a lake or the ocean. I love it. Had to replace a bunch of siding too. Since you got sick and then my 4 year grief the house was in neglect. I want to leave it in the family so I thought I'd better fix it up. Weird, all the decorating and planning was always your responsibility. But I think I did a good job, and you would be pleased. Love you, I pray your resting in peace. Good night my love, Bobby xoxoxo"
"Hi Sweetie, for the past 4 years without you I've had to learn to live on my own. I know, that probably seems rather silly, but being with you for 39 years and having a partner to share in on all the decisions seemingly allowed us to do everything right. Our successes in life were a joint effort. So I've decided to go out on a limb and repaint the house a different color. Scary. Since our house dominates the neighborhood in size, I have to be so careful with the color I choose. I refuse to stick to the traditional colors, as I know you were such a unique person and always thinking outside the box I need to as well. So I've chosen a color called, Bayside Blue, which on the wall looks a bit green. But that's my choice. For a trim I'm going to use a beige. We have so much trim, I believe it will tone down the base color a bit. I learned that from you. Lets just hope I get it right. Then I'm going to put all new windows in using the Pella brand to match our back sliding doors. It's gonna be beautiful, I just wish you could see it. Who knows, maybe you will. One of life's great mysteries. I love you sweetie, and always will. Bobby xoxo Rest in Peace Annie. xoxo"
"Hi Sweetie, just checking in. I know I don't leave the tributes or write on here the way I used too, but you know the truth. I stay busy writing about you on "The Caregiver Space" in New York City. Since Dec 2014 I published 30 blogs, and have 5 more scheduled. The last one I wrote which will be published in mid May, is 5,500 words and deals with the hospitals first attempt to put you on hospice. All my blogs fall under the heading of the book I wrote on you, "Because of Annie." It's all good baby, and I'm doing better now. Only took four years, and over a few million words. I love you darling, rest in peace Annie. Bobby xoxoxox"
"Hi Sweetie, not much happening around here. My birthday was on the 18th of March. All I did was stay in the house all day. It did start off okay. At midnight our daughter Melissa and our granddaughter Hannah pulled up to the house around 12:10 A.M. blowing the car horn to the tune Happy Birthday To You. Hannah jumped out of the car with two birthday helium filled balloons, followed by Melissa dancing to the music from her cell phone, "Uptown Funk." She and Hannah danced to that music on our front lawn and sang some made up happy birthday song. Then they presented me with my favorite cake you used to make me. German Chocolate Cake. I pigged out. They stayed about an hour and left. It was fun, but we were missing you. I wish I could see you. Rest well baby, Bobby xoxoxoxoxo"
"Hi Sweetie, we laugh, we live, we love, and sometimes we die--then we cry. That was you and that was me. What the hell happened Annie. Will I ever understand. I try so hard to make sense out of how suddenly life can change. One minute you were here, one breath later you were gone. As I'm learning, sometimes it's simply a case of bad luck with cancer. Your cancer was rare, and the odds of you getting it were tremendously against. But it appears one cell popped out of your bone marrow into your blood stream and it was malignant. The rest is a horrible tale of pain and suffering. I'm doing okay, but still miss and love you. I hope you're resting well my love--Bobby xoxo"
"Hi my friend Annie,I Have not been on for a long time,I just found out that your hubby Bobby has give my dad a life time membership on this forevermiss,Which touch me so much,Your a thousands miles away but i seem to know you both,I really miss my dad,And my big brother David,Please look out for them Annie has I have so many Questions i would like to ask them,Night Annie and thank you for sending me to your hubby to chat to,Has it wasn't for you i would never of found a mate to talk to,And he miss you so much AnnieXX god bless you xxxxxx"
"Hi Sweetie. It's been a long day today. Still trying to figure out which fork in the road I need to take. Here's a neat story for you. Melissa called me earlier tonight and told me that baby Beaux was laying on her bed while she was washing her face. When she came out of the bathroom he was staring at the corner of the room laughing and smiling, and making a lot of baby talk. Melissa said he was acting like he was talking to an Angel. Wonder where she got that idea? I said no, it was just his "Nanny." We see you everywhere Annie. Your spirit is strong and your star is still bright. I love you, Bobby xoxo"
"Hi Sweetie, having a bad night tonight. Very lonely. Seems my favorite thing to do when I'm feeling out of sorts is visit you here on your memorial. What else can I do? I had know idea just how lonely life could be. I know I've said this many times before, but when does it end--perhaps it never ends. Well, it will when it's my time to come see you. I find so much peace on your memorial, thank God I set this memorial up. Don't know what I would have done without it. And that's why I encourage others to do the same, or at least keep a journal or a diary so they can look back in real time. I love you sweetie, hope you are resting well. Bobby xoxo"
"Hi Sweetie, Not much going on in this part of the woods. I'm back into the not doing too much these days, other than write my blog in honor of you. I've been sharing you with so many people. Their inspired by your story. I published a blog last week, titled, Grief and Dreams. In the first few days it was shared over 700 times nationally. You are slowly being introduced to the world. I love and miss you Annie, Bobby XOXO"
"Hi Sweetie, been awhile, but you're never far from my mind and I just keep on loving you. Annie your star is still shining bright. I joined thecaregiverspace.org and am now one of their two Ambassador's. What's so special about that is, I'm meeting so many people in need that I can actually help. My blog post's are 99% about you and your story. You're inspiring so many. One lady wrote, "I love Annie." Isn't that wonderful. I wish they could have all met you. Wow, sitting here and listening to your music while writing is really hard for me to do. I still miss you so much. I would love to put my arms around you and feel all the love we shared. Annie, I'm always here, loving and missing you. It's been just over 4 years now, and at times it seems like yesterday. I love you, Rest well--"Bobby" XOXO"
"Happy Birthday Sweetie. You would have been 65 years old today--and no doubt full of life and spirit as you always were. It's now been 4 years 1 month and 10 days sense you went away. Sitting here writing to you tonight it not that much different of a feeling than it was when I started this memorial. Yes, I can write to you now without tears running down my face and making a mess of things, but my love for you is as strong as it ever was. And anytime I look to the heavens there is always that chance that I might just see a fleeting star that will remind me of you flying around on your angel wings. I like to think that anyway. I love you Annie xoxoxo"
"Hi Sweetie, I've been in California for about 13 days now. Does my heart good to see and spend time with dad. It's amazing how he keeps on going. He is 87 years old, and probably among the last of our great WW11 heroes. He is frail, very weak and losing weight. I take him biscuits, gravy and 2 eggs over easy everyday to put the calories on him and add some protein to his diet. Plus you know biscuits and gravy is amongst his favorite foods. As I sit here listening to your music alone in my bedroom, I'm really missing you. I wish you were here. Folks say everything happens for a reason, but what is the reason. You were so beautiful and healthy, it so difficult to understand, and perhaps I'm not meant to understand. I guess it's true--we never get over grief, we just get through it. Love you darling, Bobby xoxo"
Have a suggestion for us?