Through years of medical treatments for Lewy Body Dementia and other chronic and acute conditions in physicians’ offices, hospitals, skilled nursing, rehabilitation facilities, home health care, and at home hospice, Lilburn was a courageous, non-complaining patient who kept his dignity intact through it all. He always greeted doctors, nurses, aides, and therapists with his smile, even when all he could manage was a weak one, and thanked them for helping him.
Although he had more than his share of less than caring and less than competent doctors, he was blessed with some very compassionate and capable physicians, nurses, aides, and therapists. He and Dr. Robert Parker, his geriatrician and primary care physician at the University of Texas Health Sciences Center in San Antonio, developed a special bond. Dr. Parker always took time with Lilburn and Rosemary and was the first knowledgeable person to diagnose and treat Lilburn’s LBD. Other doctors associated with UTHSC-SA and the Acute Care for the Elderly (ACE) unit were also skilled and considerate.
Many nurses and aides provided Lilburn with excellent hands-on care, especially those in the ACE unit and the Mission Skilled Nursing at Air Force Village in San Antonio. He was particularly fond of Lily Ramos, Ally Phipps, and Ronda Mills, nurses at the Mission and Aleisha, nurse at the ACE unit. Because they worked with Lilburn for 100 days in 2012, he’d want mention of the CNAs at the Mission: Angie Martin, Sherry Woodard, Matt Saxton, and Sally Ponce, as well as the physical, occupational, and speech therapists.
Lilburn was blessed to have Catie Loymeyer Moerbe provide volunteer physical therapy activities at his home during 2012 while she was in college before entering the physical therapy doctoral program at UT-San Antonio. She was a breath of fresh air, and Lilburn loved to hear her stories about horses and dogs. Because of her special communication skills, she got Lilburn to do exercises when at first he resisted.
Since 2010, Lilburn needed increasing care from in-home caregivers to be able to stay at home with Rosemary and most recently with Alyce, Dawson, and Sydney while Mark has been deployed to Afghanistan. It is not easy to find skilled, experienced, kind people. Lilburn was fortunate to have three such individuals.
Mary Sifuentes brought sunshine into the house in Seguin, Texas, as well as years of experience in caring for the elderly. Although he fired her repeatedly (always kept his sense of humor), Lilburn adored Mary. Her family also embraced Lilburn and Rosemary. Mary accompanied Lilburn from TX to VA to help him adjust to his new surroundings. She, Rosemary, and Mark have many funny stories of their RV drive with Mark at the wheel (which Dawson and Sydney still ask to hear).
Deana Landrum provided care for Lilburn for a year in Springfield, VA. There is no person more meticulous about safe, gentle, and appropriate care. She knew what he’d want to watch on TV, the sections of the newspaper he’d want to read, what he liked to eat and drink, and how to keep him comfortable. She also took the initiative to assist Rosemary and Alyce with household chores. She started his day with a smile!
Venas B. covered the hours after Deana left until bed time. Lilburn always greeted Venance with a hand shake. It was beneficial for Lilburn to have some male companionship and he bantered with Venance often. Venance sensed what Lilburn needed in the evening which could be a difficult time for him, made sure that he ate, took his medications, and got to bed comfortably. He, too, helped with household tasks willingly.
Finally, the staff of Capital Caring Hospice, especially KariJo Fleming, Lilburn's nurse, provided support not only to him but to his entire family during his last eight months so that he could remain at home surrounded by his loved ones.
“The power of love to change bodies is legendary, built into folklore, common sense, and everyday experience. Love moves the flesh, it pushes matter around.... Throughout history, tender loving care has uniformly been recognized as a valuable element in healing” (Dr. Larry Dossey). Lilburn was fortunate to have lots of TLC by people who treated Lilburn, the person, not just his diseases.