ForeverMissed
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His Life

2 1/2- passing

November 19, 2013

After your birthday, things settled down and we went back to being us. We were supposed to move in June of 2013, but things got switched around and we ended up moving the last week or 2 of August. In the beginning of September, you started school. Dad and I were so excited, you were too, although you didn't know what for. To watch you get on the school bus in your awesome wheelchair was amazing. Your face lit up so much, it put the biggest smile on dad, nana and I. The 3rd day of school you came home and running a fever, so we kept you home from school for 4-5 days, then sent you back, you came home again with a fever so left you out of school for a week. You loved school, they sent home a note everyday to let us know how your day was and never was there a fussy day. On October 27th, 2013, dad and I decided to put you to bed together before I go to work. I closed at work that night. I came home from work at 4AM and like always when I close, I check on you because I am awake. You woke up because I turned on your bathroom light, you looked at me with a smile and then a big yawn. I sat you back up on your bed and filled your feeding bag back up with food wand water, so I didn't have to wake you back up in 2 hours. I went to bed and woke up at 11:52AM, went to the bathroom and then your machine started beeping, went to check on you and shut the machine off and you were laying the bed not breathing. I yelled for your dad, he saw you and I called 911 to come, by then I believe you were already gone and it was too late, but dad and I had HoPE. The EMS rushed you off to the hospital, your nana took us to the hospital and they worked on your for a little but until the doctor got the phone call that told her that he people had to stop work on you. They then pronounced you dead at 12.58PM October 28, 2013. Not a day goes by that dad and I don't miss you so much, we cry everyday, look at all your pictures. You had a smile that lit up a room. I love and miss you Parker!!!!

2nd Birthday

November 19, 2013

For your second birthday, dad and I had decided we were going to take you to Chuck-E-Cheeses, although you cannot physically play the games by yourself of crawl up in the tubes, we knew you would smile and have a blast, you loved other kids, they lit up your life. You tried to grab Chuck-E's nose, it was so funny. You dug into you cake and got it all over your face, lol. They had a ticket blaster machine that dad took you into. You kept looking at dad being silly in there with you because he had on the goggles to protect his eyes. Laughing at dad being silly is so memorable. Dad and I took you to play some games and use your hands to help press down buttons to play the games. Lots of the kids there gave you almost or all of there tickets so you could get a really nice prize for yourself, we choce a t-shirt for you and some small things that you could actually use. Their shirts run big, and since you were so small, you could probably wear it until you were 10 lol. 

1 Year Old

November 19, 2013

Everybody was excited for your first birthday to come. You weren't so sure what was going on, but you were happy, always was. We had your first birthday at our house. Dad and I had bought Elmo decorations and hung them up around the living room. Your great grandma Larabee found me an Elmo cake pan to bake you a cake. I baked you 2 Elmo cakes. Your grandma Daily, bought you your own small personal cake to devour. She went outside to talk to your great aunt and missed you digging in your own cake by yourself. She saw pictures and she smiled. Plus when she got back in you were still at it, lol. Everybody came for this, this was a moment, especially since all the statistics on the web state that most kids with HPE do not last long. We were very blessed. Your first birthday was a success and you were so smilely. 

4-5 Months Old

November 19, 2013

After switching pediatricians from having the pyloric stenosis, we went in for a regular check up to your new pediatrician. He asked if we noticed that you have a small head size compared to a child your age. Of coarse dad and I hadn't noticed that before. You are our first child. We thought it was perfect, it fit your body size and all. Pediatrician then said he thinks you have Microcephaly, which means small head. So, he ordered a CT scan, so in March 2011, we went in and had a CT scan done of your head. Results came back with Microcephaly. Pediatrician said that most kids with Microcephaly usually have other medical problems. Dad and I were unaware of the medical problems before birth. The pediatrician then ordered for a MRI to be done. In April 2011, we went in and got the MRI done of your head. When results came back, I was at work and the doctors had called me. The dotors had said that you had a medical condition known as Semi-Lobar Holoprosencephaly (HPE for short). I was lost for words, I never heard of that before. They began to explain that instead of the two hemispheres forming together, they had a little seperation and in that seperation fluid filled the space. The nuerosurgeon had suggested to look into the MRI to check for Hydrocephelus, which means the space with fluid has too much and you would need a shunt. Thank God that wasn't the case with you. He kept regular check ups with you to check for excess fluid. 

 

1 Month Old

November 19, 2013

You were a blessing ever since you were born. Life was so special, you were such a doll. You often threw up a lot, so dad and I took you to the pediatrician, he said if you continue to throw up to take you to the emergency room. The next afternoon, I was feeding you a bottle and you threw up again, and this isn't regular baby throw up, this is projectile. As soon as you ate, you threw up and was hungry again. So we took you to the hospital, and they said you had pyoric stenosis, that you had to go to Children's Hospital. So off to Children's Hospital we went in your first ambulance ride. They had to do a small surgery to correct the problem. While there, they said from all the throwing up you had been doing, you had low electrolytes. In order to correct that, you had to stay in the hospital and slowly build up them. You spent 5 days there. Then you were good to go home and eating had become much easier for you. To see you not throwing up constantly put a smile on my face for sure. 

The Day You Were Born

November 19, 2013

You were due on November 17th, 2010, but did not want to come out. The doctors at the hospital only allow up to 5 days late, you still weren't out, so the had to induce me. I went into the hospital at 8PM November 22, 2010 to be induced, a few pregnant women ready to deliver had come in, so the pushed back me being induced. Around 11PM, they came in the room to get the process started. It wasn't working, so tried it again around 6AM, still nothing, so again one more time, another method, that started to work. I called your dad right after they gave me the pain meds to come up there, this was getting started. I was in pain for a while, I chose for the epidural. I was glad, because mom and pain doesn't work. They broke my water and it was a waiting game. Then at 8:01PM November 23, 2010, my life changed forever, you were born!!!! Dad and I were so happy. To finally see your face.