Today marks the second year anniversary for the passing on our son Chase. There are no words to describe this feeling of his loss.He is missed more than anyone will ever know. Many things have changed in the dynamics of our household as we adapt to a new normal yet Chase is still remembered daily. There remains a hole, a space, an emptiness that nothing can fill. It is as if we lived on the frontlines of a war fighting against this disease called MPS.Always on high alert, emotions in full swing,ready to run, act, alarms always going off. Trying to be part of the normal paced world yet living in the world of an MPS child was very difficult to say the least.Twently years of feeling a pain that we knew was coming. Carrying that in our hearts and minds took its toll on us. There is nothing to prepare you for the pain one feels when your child leaves this world. The pain does not ever ever lessen or go away. You just learn to hide it better. You are forever wounded, never to be the same person. We look forward to seeing you in Heaven Chase. I can't wait. You took a huge piece of my heart when you left and I can't wait til the void is filled again with your smile. We love you Chase and we miss you. Tierney, Christian, Marina, Mom and Dad send all our love to you today.See you soon Chasie.