Thanks to a great many friends, we were able to donate $701.00 to NORD National Organization for Rare Diseases in memorial of our late son Evan and in honor of Leo Trost, who lives with VACTERL Association. The donation went specifically towards the research of VACTERL Association. We couldn't have done it without you all! GoFundMe took a portion of the donations, which Dom & I contributed to make up the difference. We never thought we would have even raised $20.00 but all of you proved us wrong and words cannot describe just how much your love and support and donations mean to us. Our son lives on in all of you. xoxo Much love, Melinda & Dominick Lichioveri