Carter was born on 14th August 2009 at the Mater hospital in Brisbane, Australia. He was born of an emergency cesearean section. When he was in hospital, his body temperature was so low that they placed him in an incubator for the majority of the time. The day after he was brought home from hospital, the Department of Child Safety removed Carter and his 2 older sisters and older brother from their mother due to the house being too small. The same day, DoCS noticed something was wrong with Carter - he was having trouble breathing. They called an ambulance, then contacted the mother, telling her she didn't need to be there and that they would call. One hour later they called and informed the mother that Carter had fractured his skull, and insinuated that the mother had done it. Mum rushed to hospital with Nanny, only to find that his skull wasn't fractured at all. Carter was having seizures. Upon hearing this both mother and nanny demanded tests, but deep down they both knew.... Carter Hendrix Jones had Menkes Disease.

Menkes Disease is a very rare genetic disorder. It is caused by a lack of copper in the body, and affects only boys. Carter's mummy had 3 brothers who passed away from the same disease. Unfortunately, because it is so rare, 90% of people have never heard of this terrible illness, and even worse there's no cure for it as yet.

Carter went to live with a lovely nurse, while his sisters and brother were placed together in another home. Eventually the mum was able to obtain a larger house, and the children came home.... all except for Carter.

Carter continued to go in and out of hospital, each time getting just a little bit worse. His parents knew what the outcome would be, but tried so hard to stay strong.

On the 15th April 2011, Carter's sister Luci was just waking up for her 6th birthday when there was a knock on the front door. Mummy answered the door and instantly knew that Carter had passed. At this present time, we are all in a lot of shock, and I would personally like to take this time, as Carter's mother, to say thank you to all our supporters out there. Your love, support and respect means everything to our family.

Love Carter's mummy,

Cher. xoxo