Shiloh Jade pepin was born to her parents Elmer and Leslie pepin on August 4 1999 in west Kennebuck Maine USA. Shiloh Pepin suffered from Mermaid syndrome an extremely rare disorder that meant her legs were fused together from birth. Mermaid syndrome affects every 100,000 live births and is usually fatal within a day or two of birth. When Shiloh was born with this rare disorder her parents were told that that their daughter only had a few days to live. 4 days after Shiloh's birth she was still alive she was able to be taken home for her first time. Because she was born with just  a quarter of her kidney Shiloh had to undergo two kidney operations in her short life the second would change her life forever. It gave Shiloh a love of life and for the first time she was able to do some of the things other children her age would be doing. She learned how to swim with the help of her swim coach and she was able to attend her local elementary school. As she strived to become more independent she left home for the first time to attend a weeklong summer camp. This would be her first time away from her parents for more than one day. And in August Shiloh achieved the unimaginable when she celebrated her 10th birthday milestone doctors feared she would never reach. She celebrated her 10th birthday on August 4 2009. Just two months after Shiloh's 10th birthday party she was diagnosed with a severe lung problem and became very ill. She was rushed to a hospital nearby. Shiloh was being treated her heart beat stopped once and doctors used CPR to revive her. She was then showing signs of improvement yet she was still very ill and wasn't breathing properly. Shiloh was breathing with help from oxygen tanks and vents. Shiloh was being treated and she kept fighting. But on October 23 2009.... Shiloh Jade Pepin last battle to save her life came to an end. 

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