Yesterday would have been your 66th birthday.  Emily and I did your favorite things- we spent time together shopping and eating. Ella joined us. It’s turned into a new tradition. Remembering you while doing things you loved with people you loved

I love you so much my heart could explode. I miss you to the point of tears , still.  You were the BEST Mom and the BEST friend.  I can’t wait to see you again. Happy belated birthday Mom!

My heart was broken 5 years ago when I learned of Susan’s passing. So many wonderful memories. She truly was a beautiful person inside and out. I feel honored to have been given the times we shared. I miss you Susan and I love you Fly high beautiful angel.

My dearest friend, Susan, it's been 5 years since you left us. I still miss you just as much if not more than I did then. I still look to you for guidance and signs that you are with me... Dragonflies. I carry you in my heart always. I love you so much! Until we meet again, sweet friend, rest easy...

Such a beautiful soul- miss your smile Susan!

Just now able to read everyone’s messages this year. Missing you an extra lot this year. Grief is funny, I know you know that. Feeling super cheated, 65. That’s how old you would’ve been and you’ve already been gone almost 5 years. Too young. Life is so much harder to get through without your wisdom, advice, humor, love, laughter, support, honesty, and hugs. You truly were the BEST friend and Mom. So this year I’m happy for you that your not on this earth living in this crazy world but I can’t make my heart FEEL that. My heart feels cheated and I miss you incredibly. You were such an amazing person, 5 years and your friends still visit this page and leave you messages. You wanted to leave a good legacy and you sure did. I hope you are laughing and dancing and having the best time up there. I love you Mom, Heather

Happy Happy Heavenly Birthday Susan!!! I love you and miss you SO MUCH!!! You are always in my thoughts and prayers ! Not a day goes by that I don't think of you and your words of wisdom! I hope you are up there partying like only you know how to do! ❤️ 

Happy Birthday my sweet Susan! I miss you today...as every day. It's lonely down here without you. I hope you are celebrating with Daddy and mom and Phill.

4 years Susan... where did the time go?Nothing much has changed down here. I love and miss you so much and always will! Your spirit and legacy lives on! I, and a lot of other people whose lives you inspired make sure of that! We will always continue your work down here just as you wanted. Love you always!

Wow 4years ….doesn’t feel that long as you are still a constant in many lives . Never physically met you but still felt connection with you. Your legacy is still powerful… gone in body onlyxx

Happy 64th Heavenly Birthday Susan!!! I miss you SO much!!! You were my sister from another mother. You were my friend. You were my "go to" for your great advice, your wisdom, and your laughter. I miss you today just as much as I missed you when you left us. You touched so many people's lives. Your legacy continues on!!! Rest in paradise, my friend. I love you! 

Happy heavenly birthday mom. I love and miss you tremendously. I hope I am continuing to do what you think would be best and how you would advise me to do it!! I tell Lil Sailor Grace all about you. Hope your dancing like crazy.

Happy Birthday Mom! You’d be 64 today. I woke up not just sad you’re not here to celebrate, but just pissed. 64. You should be here! I’m stuck here without you, trying to navigate hard times and I need you and you should be here. 60 was WAY too soon for you to go  
You had so much life left to live and so much more to offer. I wasn’t done learning from you. 

I have no choice but to do all this without you. I hope I’m doing what you would do. If you could send me a sign it would be awesome. Like you know slap me in the head with a tree branch or something.

I love you. I miss you. I’m beyond jealous of the celebration you’re having with the angels today. 
Happy birthday in Heaven Mom. 

I made it. You’ve been gone 3 years now. I wonder when or if this gets easier. Part of me doesn’t want it to get easier, like somehow it will lessen what we had or something. It’s hard to explain. Grief is hard and weird and I hate it. Sure would be nice if I could talk to you about it. You were SO loved. You lived your life in such a way that even 3 years later your friends sent messages, called me and checked in. It’s comforting and honestly what gets me through these anniversaries. You are an inspiration Mom. I want to live my life in a way that I leave as big of an imprint on this world and people as you did. I miss you terribly. I can’t wait until we see each other again. But until then I’ll be a good Mom, wife, sister and friend. I’ll teach others what you taught me. I’ll make sure your memory lives on forever.

Lovely lady no doubt your company is loving and appreciating you as much as us in this realm . No dementia to restrict you. Cannot imagine how your brilliance must bexxx

My dear friend, Susan, I imagine that you are up there enjoying those who went before you. Your beautiful soul is always with me in my heart. I miss your spunky spirit and your calming effect. You are in my thoughts every day. I love you and miss you SO MUCH!!! Rest easy until we meet again. ❤️

You are such a vibrant and beautiful soul. You remain alive in our hearts and minds even as we miss your physical presence here with us <3

Happy Heavenly Birthday Susan!!! I miss you SO MUCH!!! There is not a day that goes by that I don't think about you. I miss your infectious laugh and your words of wisdom, but most of all is your friendship. I have your magnet on my refrigerator and my dragonfly that greets me every day coming or going. Have a great day with all who went before you!!! Laughing, dancing, drinking, and just having a great time!!! I love you!!! Until we meet again, rest easy...

Happy Birthday Mom!  I miss you so so much all the time but especially this time of year. You are no doubt laughing and dancing and drinking in heaven today. Oh how I wish I were with you, but I’ve work here still to do. So until I celebrate with you in heaven, Happy Birthday Mom! I LOVE YOU

Every morning and every night I look at your pictures on my nightstand and miss you. I love you Susan.

I miss the sound of your laugh . . . I still remember the feeling of your hug . . . I still have the last voicemail you left for me. You left such a huge impression on my heart and soul and you showed the world what bravery, fortitude, and positive thinking looks like and how it should be emulated.
May you continue to rest in peace and be sure to save a place for me,

Love,
Brian

My precious , brave sweet angel friend Susan,
Hardly a day goes by when I do not think of you & look up to heaven & smile & give thanks for your life. Can’t believe it has been 2years.

Forever thankful for the gift of your friendship, you gave & still give me strength to put one foot in front of the other every single day , I sure miss that infectious Susan laugh, our chats & those hugs of yours though .

I know you are in a better place ,until we meet again ,keep flying high on angels wings & enjoying the most deserved eternal rest my lovely girl ,
             Love always ,
               Maria
                xxx

   

My dear Susan, I can't believe it's been two years since you left this earth for better things. It feels like so much longer. I can't express, in words, how much I miss you. I miss your calming soothing voice bringing me back to reality. Your beautiful smile and your beautiful soul will be in my heart forever. I love you Susan. ❤️

Aww lovely ...two years since your body had had enough... What a lovely one you had. The essence of you is still very present. Who can look at a photograph of you and not smilexx

Always in our thoughts dear friend,
Norrms and all at Purple Angel dementia campaign

Love amd miss YOU!
#2yrsago2day

My sweet Susan, life is not the same on this earth without you. I miss you in the deepest parts of my soul. No matter where I go, you are with me and that offers me peace. I can hardly wait to see you again!

To Susan, it's been 2 years and seems like only yesterday when we would share laughs and tears. You will always be special to me and have a place in my heart! Fly with the angels because that's who you are.

Love,
Helaine

2 years today. I miss you so much. I’m not sure my mind will ever let me forget the last days of your life. I’m not sure I want to.  It was an honor an great joy to be able to be there all the way to the end. I miss you Mom. Not just today, everyday.  You were my biggest fan, my soft place to fall, my happy place, my best friend, my free counselor, and the BEST MOM EVER! I can’t wait till I see you again. I love you

Awe Susan, how I miss you! Right about now, I could really use your wonderful hugs and to hear your voice tell me "be still'. Now breathe. Slow breath in. Now slowly exhale." Then you would tell me all the possibilities that I didn't think of. You would have me laughing by the time we said "I love you". And, boy do I! Happy Heavenly Birthday Susan!!!

2 years of not calling you on your birthday. It’s so long. I miss you so so much it hurts. I look forward to the day I see your face again and can fall into your arms. Living without you is the hardest thing I’ve ever had to do. Someone said “ with great love comes great loss” , or something like that. I loved you BIG.  HAPPY Birthday in heaven Mom from your daughter that misses you tremendously. 

Your legacy lives on, Susan <3

Susan,
I can’t believe it’s been a year already. I still listen to the last voicemail you left me for it makes me laugh, strengthens me and gives me the push I need to continue my advocacy.
You will always live within my heart,
I’ll always hear your laugh when I need it,
You will remain my hero.
Do me favor and give my Mom a hug.
Love,
B

Oh Susan, how I miss you. It's been a year since you left us. My beautiful friend, you always knew what I was thinking when I couldn't put it in words. Your wise words always taught me. Your laugh was infectious. Your big hugs always comforted me. You are in my heart and soul forever. Not a day goes by that I don't think about you. The world was a much better place with you in it, but you are in a better place where you are whole again and you have no more pain. I Iove and miss you so much. Rest easy until we meet again...

Susan, your light shines on strong and bright, guiding people who live with dementia and dementia care advocates as we fight for better care and better lives for all. Thank you for all you did while on this earth, and for being our angel guide moving forward.

Hi Susan,
Every day I see you in mind's eye pulling into my driveway, smiling that beautiful smile, cigarette hanging from your mouth, hair in a ponytail, music playing, and you turn off the car and jump out to give me that big hug I always need. Do I miss you? Every day, every hour. You live in my heart and mind every second. I hear your wise words whatever I'm doing. We never, ever stopped sharing our lives and it hasn't stopped yet. Hey, would you meet me at the gate when it's my turn? I want yours to be the first shining smile I see when I finally get home! See ya later, alligator! I love you more...

The oceans were never that big between us my friend, so now the sky and the earth won't be either. our friendship knew no boundaries, so why should we
Forever missed dear friend
Norrms
Founder of global purple Angel dementia campaign xxxx

Of all the people I have met over the course of my lifetime, Susan will forever stand out as a person who inspired me with her courage, humor and inner strength. She was a role model for people with dementia, encouraging others to make every day count. She walked the walk and helped countless people by the example she set on how to live courageously with a disease that she took control of and managed on her terms.  Happy Birthday, Susan, your beautiful spirit and legacy continues to shine here on earth.

Happy Birthday to my beautiful sweet sassy "sister" Susan!!! I love and miss you so very much!!! Have a great heavenly birthday, as I know you will!!! ❤️

Love and miss you! Happy heavenly birthday!

Happy Birthday Mom. This year is so hard without you.  I’ve cried so many tears. I miss you so much.

Never forgotten- Susan- you left your mark on everyone you touched. Peace and love to you on your birthday.

Happy Heavenly Birthday, Susan. While we know you are HAPPY and free, our hearts are still broken and heavy without you here with us. But we know that you are watching over us and in the blink of an eye we will be reunited again. Thank you for all your love and laughs. You are so very loved by so many! Death will never take any of that away. I love you. I miss you.

We are so so honored to have met you, maybe not in person. But through your lovely Maria over video/zoom and you were there when maria and Rhys went to buy my beautiful engagement ring, it makes my heart so happy to know that they face timed you from Folly Beach just 6 weeks ago and showed you my engagement ring before anybody, even my mom!!! Lol. All the laughs, all the inspiration everything. The last two years since maria has been diagnosed with FTD/PPA, Susan, you were the only constant wind beneath her wings. We couldn't thank you enough for supporting and being there. Thank you so much sweet angel ❤

Fly high sweet soul and ride those Harley's in heaven for us!

Love,

Kayla and Rhys

I thought about you today, but that was nothing new.
I thought about you yesterday and days before that too.
I think of you in silence, I often speak your name.
I have so many memories and a picture in a frame.
Your memory is a keepsake, from which I'll never part.
God has you in his arms. I have you in my heart.

I am deeply grateful that you got your angel wings surrounded by people who love you dearly.

You were the very first person I talked to with FTD PPA at the 2016 AFTD conference in somewhere really Fucking cold - we sat outside, me sitting in your walker and you sitting on the wall, smoking cigarettes and peeing ourselves (literally) from laughing so hard! You were placed in my life that day, and I thank God for it.

Since that first time I met you, you taught me hope, dignity, compassion, integrity - about taking the high road and so much more. You were the first person to show me there was a way forward in this disease.

Through you I found that I could live *with* this disease instead of dying *from* it.

To see you how you have managed this goodbye so lovingly and gracefully is truly a witness to the difference you have made in my life and in others' lives as we learn to carry on and put our energy into living every day as a gift.
Godspeed, my dear friend.
Looking forward to the Butterflies ,hummingbirds, and dragonflies this year xxxxxxx

My besties youngest daughter.  I will never forget you. Tell Barbara i miss and love her very much. I'm sure she is glad to be with you again, but sad you left your family behind.  Tell Phil I said send me a Coors from above.

I will forever remember your sweet smile! You touched so many lives and made everyone around feel as if they were family. We are all going to miss you. Thank you for letting me be a part of your life. Love and Hugs! God Speed!

the hardest path i have ever walked with FTD but such a blessing with your daughter and YOU mirroring FTD advocacy, and living WELL in spite of story YOu have made my journey inspiringing ... heartfeld, tear filled, giggle, and THE HIGHEST purpouse of helping others and our self with the final stages of life, xo i will see you in the field where perfect dna , health ,and love exist . love u susan ! love kelli

Susan, my beautiful sister, you have been beside me throughout my life and now it just feels too lonely without you. You taught me how to be a mother, a woman, a friend, a wife, and how to be myself. You forgot to teach me how to be alone. You left me too soon. I will live every adventure knowing you are with me, encouraging me and cheering me on. Thank you, Susan, for ALWAYS loving me...I will ALWAYS love you! See ya later...

Susan and I were diagnosed with Frontotemporal Dementia at about the same time. We met after joining Howard Glick's FTD Patient Support group. And, then we met in person at the 2014 AFTD Educational Conference. Susan's hugs, her smile that lit up any room, her sense of humor could take you from down low to beyond happy, her infectious laugh, all of these things personafied Susan. But, what was really the essence of Susan was her spirit, courage, honesty, say it like it is, perseverance, eloquence, loving, caring, reaching out to everyone who needed help or to be lifted. Susan was beautiful inside and out and she lived life to the fullest. To me, Susan was a friend who was my light at the end of the tunnel. I love her so very much and I will always carry her in my heart. I miss my beautiful friend, but I can still hear her words. She is the dragonfly I see on my walks and the brightest star in the sky.