On Jul-19-2012, When we heard my brother was in the hospital, my stomach got upset and I vomited many times on my way home back. We saw him in the hospital. He was restless, talking to himself and walking with full conscious. We took him to Ramakrishna Hospital. He was fully conscious and talking with everyone. He was looking alright. We didn’t know what happened to him inside ICU but definetly people were not alert inside ICU for sure. After an hour, they said he had heart attack and he went hypoxic after that. He was in very dangerous stage at that time. I was very scared to see him inside ICU and I always wanted my mom to go with me. After 2 to 3 days, he was responding to heavy pinches, but he didn’t respond to our voices. He was almost 20 days inside ICU. Everyday Mom and I had so much hope that he would regain consciousness. I used to stand outside ICU from morning till night and had little hope this time he would regain consciousness.
We moved him to isolated ICU, he was removed from ventilator and he was supported with oxygen starting from 15 litres. He was there around 15 days inside Isolated ICU. I stayed with him all the time. I talked to him all the time. I started playing his favorite songs with headphones. I started doing a little physical exercise. He started responding to my voice, lifting his head a little. He did not respond to others. When I called him, he made some slight facial movements and head movements.
We moved him to an individual room. We were with him all the time. I started talking with him more and more. He was responding more and more to my voice. He was improving but it was very slow improvement. He started breathing by himself without external oxygen support. They closed the tracheostomy. My Mom and I were very happy for his improvement.
He started responding a little bit. If I asked him to close and open eyes when I put eye drops, he was opening and closing eyes. I was doing lots of physiotherapy exercises every 2 hours. He got used to me very much. He started to taste from tongue. We removed the Ryles tube and placed a peg tube for longer term. Knowingly/Unknowingly many times staffs and doctors made minor/major mistakes at Ramakrishna Hospital for my brother; I have spotted their mistakes then and there itself. I was panic/restless and got irritated most of the times at Hospital.
We started making him to sit in a chair. He was eating a little semi-solid food. He always thought I am his mother. He was responding to my voice, he registered in his memory only my voice and my commands. He was close to my mom but not as close as he was with me. He was showing his anger on my mom. Whenever she was talking to him, he turned his head other side. But we knew he loved my mom so much and she loved him as much as anyone else.
We moved him to an apartment, close to Hospital at Coimbatore. He was improving slowly and much better. His sitting hours increased. Mom and I gave him a bath everyday and dressed him up very well. I used to cut his hair and shave his face. He was looking amazingly cute. Mom and I kissed him every now and then, hugged him and made him sleep on our lap. He was feeling so much better, comfortable with us. We had unconditional love for him and he loved us so much. We took care of him so much I can bet no one would have done to anyone. I was watching him almost 24 hours a day on close observation.
He was improving day by day, but his bed sore was not healing. We moved him to our hometown. He had a very high fever because of bed sore. We treated him at home. The bed sore took more than a month to heal. I used to play with him and talk to him more. He was listening to me and I could see his smile, happiness on his face.
He was not talking, standing or walking. We made him sit in a chair for longer times. Since I had spent all my savings money and we needed money for my brother’s further treatment, I got my visa stamping done, and could go back to work. Checked on how he was with my mom for couple of days. He was doing good. Mom could handle him alone for couple of days.
He loved me so much and wanted me to be with him all the time, play with him and talk to him but very unfortunately, we had no money and I had to go back to work. I thought I would come back to US first, then later will bring brother and mom here together for any further treatment. He came with mom to drop me at the airport. It was 1hr 30mins drive to airport. I just can’t forget the memory. He was sliding on my shoulder, I was holding his hand, doing a little pampering. He was sleeping very happily and comfortably on my shoulder. Once we reached the airport, I gave him kisses and told him to listen to Mom, be a nice guy. I was having mixed feelings and very emotional to leave him.
After I have reached to US, talked to mom on phone and she used to keep phone on my brother’s ear and say ‘Bhu’ is on phone. He would make some sound, can’t understand and I would always think he was calling my name Bhu. Very sad his speech wasn’t there, after 3 weeks later mom said brother has fever. I was so panic sitting in US couldn’t help my brother and my mom. I was reaching out all the staff people and doctor to talk with my mom, provide some help for my brother, he was okay so mom thought to take him to hospital next day early morning. He was sleeping on my mom’s lap all night, when I called I heard his last voice. He made some sound but I was not sure whether he was crying for pain or trying to tell me something. I was very sad and panic in the morning when I got back home in the evening received a call from India that my brother passed away in his sleep on mom’s lap slowly, broken our heart many pieces, its very hard, can’t explain the emotions in words, there is no word and words are falling short to express.