When Chyanne was born in 1999 we never ever dreamed that her life would take a turn like it did she was perfect 10 fingers, 10 toes, and a beautiful smile.  when she was a few months old she did not seem to be doing the things that other children could do and seemed weak.  Could not sit or stand on her feet.  At seven months we were devasted to learn that she had  a rare Genetic disorder acalled SMA or spinal muscular Atrophy Type 2 Severe Tye 1. After that point our lives took a turn.  We were told that she would not make it a year and that we were to love her and enjoy every minute that we had.  So many prayers went up and we were given two more precious years that god granted us that we were told we would never have.  Those years were so precious.  We learned at age two and one half that she had a neuro blastoma which again shocked us in disbelief.  How could this child be given two castrophic illnesses. After her third birthday we only had a few more month until she passed.  This was the hardest time we ever had.  At Christmas which was to be her last one we ask that cards be sent to her that was what she wanted so we got over 10,000 from all over the world.  We got a visit on Christmas Eve from a family who brought gifts and traveled across the country to spend christmas with this child.  It was so amazing.  The three boys did not want anything for christmas they wanted only chyanne to have something so each presented her with a gift.  She went back into the hospital after Christmas and spent the last months of her life there.  We prayed for an earthly healing but god gave us a heavenly one and before she passed I made a promise to her that i would work to help other families so that no one would go through what we had. she passed with me holding her feet and praying for her. now she is in heaven and is God's rosebu