A Letter to Friends and Family
August 31, 2020
by Cynthia Ord
Gina had an extraordinary life filled with adventure, amazing gifts, and wonderful people.
Between March and July 2020, her physical health deteriorated steadily. She had a variety of symptoms including nausea, headaches, focused and variable body aches, sound intolerance, large heart rate fluctuations, and an inability to concentrate; all of which are symptoms of Myalgic Encephalomyelitis (or M.E.). The onset was rapid and triggered by an acute illness that may or may not have been COVID-19.
Several times she appeared to be getting better, but her symptoms would relapse after the smallest physical exertion, such as taking a short walk, picking berries in her backyard, or preparing food. She learned to wear a heart monitor to avoid aggravating the symptoms, but they still persisted and it required her to be very sedentary. The mental anguish of being unable to move her body in the ways she was accustomed to, including an inability to physically play with Travis, was very hard for her. In her last few weeks, she could barely leave the house, shower, or interact with anyone.
M.E. is often not given the attention it needs from medical professionals because it is multi-systemic, has no signature diagnostic test, and has no cure. Remission in those that are diagnosed with it is rare. If there is anything relieving about what happened to Gina, it is that she is no longer suffering.
Gina spent a lot of time researching M.E. and truly believed more attention to this disease was needed. She supported the Open Medicine Foundation for its dedicated research into this complex and life-altering illness.
Between March and July 2020, her physical health deteriorated steadily. She had a variety of symptoms including nausea, headaches, focused and variable body aches, sound intolerance, large heart rate fluctuations, and an inability to concentrate; all of which are symptoms of Myalgic Encephalomyelitis (or M.E.). The onset was rapid and triggered by an acute illness that may or may not have been COVID-19.
Several times she appeared to be getting better, but her symptoms would relapse after the smallest physical exertion, such as taking a short walk, picking berries in her backyard, or preparing food. She learned to wear a heart monitor to avoid aggravating the symptoms, but they still persisted and it required her to be very sedentary. The mental anguish of being unable to move her body in the ways she was accustomed to, including an inability to physically play with Travis, was very hard for her. In her last few weeks, she could barely leave the house, shower, or interact with anyone.
M.E. is often not given the attention it needs from medical professionals because it is multi-systemic, has no signature diagnostic test, and has no cure. Remission in those that are diagnosed with it is rare. If there is anything relieving about what happened to Gina, it is that she is no longer suffering.
Gina spent a lot of time researching M.E. and truly believed more attention to this disease was needed. She supported the Open Medicine Foundation for its dedicated research into this complex and life-altering illness.