3/13 Is National Trisomy 13 Awareness Day

RibbonColor: Pink, Green & Yellow

In honor of our Sweet Baby Boy, Jr… Who would’ve been going on 9 months. We would like to recognize our Trisomy 13 Warrior today. He was diagnosed with this Rare Chromosome condition (also known as Patau Syndrome) about midway through my pregnancy. Healthcare professionals told us our Son could pass away before or within 1-7 days after his birth. Born 6/23/21… God blessed us with two amazing days with our Miracle Baby. Unfortunately, He had severe heart complications, which is related to Patau Syndrome, that caused his Heavenly departure on 6/25/21. Jr, fought a tough fight to meet us✨ I’ll forever cherish the 8 months I carried him, his birth, his 2 days of life and the memories, which comes to mind EVERYDAY!!! I miss and love him soooo much!!! Thank God for choosing ME to be his Mother‍

After learning of his condition, I started doing research (beyond what I learned from the Healthcare Professionals). Surprisingly… I did not find one African American baby/family who has been through what we were going through during our journey. I hope to bring more awareness of this condition, so other parents & families of ALL backgrounds…. can share their experiences! Which, could help someone else who’s devastated, loss and afraid after receiving such life changing news. Just know… You are NOT alone!

~Patau Syndrome: Is a genetic disorder which a person has 3 copies of genetic material from Chromosome 13, instead of the usual 2 copies. This syndrome occurs in about 1 out of 10,000 newborns. Most cases are NOT passed down through families (inherited). There’s no specific treatment. Treatments varies from child to child, and depends on specific symptoms. This paragraph is cited from Mount Sinai website.

-LONG LIVE BABY PARKS

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